Hi Lizzie, what a time you've had. As I said to Susan, use this
group, we're always around ready to reply....... and we really do
understand what you're going through. Stay strong x

--- In nzbraintumour@yahoogroups.com, "REDFERN" <REDFERN@...> wrote:
>
> Hi there
> I must admit to being a closet reader of this group for the past
three years I signed up when my father in law was diagnosed with a
grade 4 primary tumour. I remember being touched by Penny's husbands
documentary and signing up as Mike had recently been diagnosed.
Sadly my father died of cancer with secondary brain tumours when I
was 18 and Hamish my husband's mother can you believe it survived a
benign tumor 25 years ago. Mike after being diagnosed with his
tumour just over three years ago had surgery, radiotherapy and chemo
treatment which he managed really well and to everyone's surprise
has had clear scans since and has been on no medication whatsoever!
He has over this time been diagnosed with Parkinsons apparently as a
result of the radiotherapy. However a routine scan in September
showed some change and he has since Christmas slipped dramatically
with his recent scan showing two new growth areas. We have been told
now that after such a good spell that this is what can happen and
that things now progress at an alarming rate and thre is now little
we can do. We are sad and scared for what lies ahead. I have gained
so much from your emails over the past three years that I wanted to
say thank-you. We have three full of life boys who sadly did not
meet my father and 3 out of 4 of their grandparents have been
affected by three different forms of brain tumour! I am by nature a
very possitive person but must say I do struggle with this cruelty
as I did with my father and am lost as to why this happens to such
good people.......
> Lizzie
>
> Original Message -----
> From: DanZac
> To: nzbraintumour@yahoogroups.com
> Sent: Monday, January 26, 2009 4:27 PM
> Subject: Re: [nzbraintumour] Just a hello to everyone
>
>
>
> HI linda
>
> nice to hear from you. I moved house over the xmas break so
things have been rather hectic.
>
> Dan and Zac are really looking forward to getting back to
school.
>
> I know what you mean about wondering what the little changes may
mean. And I suppose they can be any number of things as you said. It
is good that Bruce has an MRI soon as then atleast you may have some
answers as to why the changes are happening. It may not be bad news
at all.
>
> all the best
>
> xx Penny
> ----- Original Message -----
> From: Linda
> To: nzbraintumour@yahoogroups.com
> Sent: Sunday, January 25, 2009 11:54 AM
> Subject: [nzbraintumour] Just a hello to everyone
>
>
> In case anyone is lurking, there are active members here we
just don't
> post too often at the moment:-)
>
> Hope everyone had an awesome Xmas & New Year.
> Bruce and I and the kids spent 2 1/2 weeks between Mount
Maunganui and
> Taupo and had a great break away.
> Now just on countdown until the children go back to school :-)
>
> Bruce is keeping well... although little things that I see
make me
> wonder? Short term memory loss worsening, peoples names and
word
> finding, and his hand/eye coordination (has been more clumsy).
> "Sigh!"
> Hard to know whether its something or nothing, and just
continued
> effects form all his treatment.
> Hard to believe that it is 5 yrs coming up on March 1st since
his
> diagnosis, but he also has an MRI scheduled for March also.
>
> take care all
> Linda
>