Hi Alicia, my name is Nina Johnston (aged 34) and I live in
Palmerston North also. My husband, Aaron Johnston (aged 38), was
diagnosed with a high grade GBM in April 06 unfortunately he lost
his battle in September 06. We have two young boys Jack who is
nearly 9 and Fletch who is 3. Although my husband passed away from
this terrible tumor I also remember feeling very frustrated and
alone with every medical visit we had..... there was never a
positive conversation (however 6 days afer Aaron's operation in
April he suffered a respitory arrest which resulted in memory loss
and blindness so medical visits were a nightmere), he did go down
the radiation path but did not make it to chemo. I am so pleased
your dad is feeling good and positive, its so important to keep
positive! I know it is such a tough time for you, your dad and
family. If it wasn't for this group I think I would have gone
completely mental! What this group did for me was give me strength
and I was also able to vent my frustration out to people who
completely understood...... and the advice and tips on things to ask
or do were a godsend. I may not be of much help to you but if you
or anyone in your family ever wants a chat or a coffee please feel
free to contact me via this group and I can forward on my details to
you. Take care and sending lots of positive thoughts your way.
NINA

--- In nzbraintumour@yahoogroups.com, "aliciawh" <aliciawh@...>
wrote:
>
> PS...my name is Alicia :)
>
>
> --- In nzbraintumour@yahoogroups.com, "aliciawh" <aliciawh@> wrote:
> >
> > Hi everyone
> >
> > I am just new to this group so thought I would quickly introduce
> > myself. I am 19 years old and live in Palmerston North. In
August
> > this year my father was diagnosed with a high grade glioblastoma
> > multiforme. He had the awake craniotomy preformed in Wellington
a
> few
> > weeks later, and is nearing the end of his radiation treatment
now.
> > He remains amazingly positive and is still full of life,
although
> > very tired.
> >
> > That's his story anyway. I am finding it increasingly difficult
> > dealing with things as we are constantly reminded by doctors etc
> that
> > his prognosis is poor, however we still believe he will live
till
> > he's 95 :) I would love to hear stories about any long term
> > survivors, so if anyone could point me in the right direction to
> find
> > some related threads that would be great...not really sure how
to
> > find my way round here yet.
> >
> > Lastly i would like to express my appreciation for you Penny,
and
> > your husband Dave. The million dollar tumour documentary was
very
> > touching - what an inspirational story. I would like to thank
you
> for
> > the fight the two of you put up. I had no idea only 3 years
earlier
> > Dad may not have had the chemo pills available to him. He will
> > continue to take these for a further six months which will
increase
> > his chance of survival, and that is thanks to you.
> >
> > Much love to all
> >
>