Hi Lynda,
Thanks a lot I will check them out.

Regards
Heather

P.S: Must have been having a blonde moment when I sent the 1st
email. hubby's name is Dennis.




--- In nzbraintumour@yahoogroups.com, "Tse Family" <tsetribe@...>
wrote:
>
> Hi Heather
>
> Here are 3 websites which I found helpful when first diagnosed:
>
> http://www.virtualtrials.com/
>
> http://www.abta.org/
>
> http://www.braintumor.org/
>
> On these websites there are links to survivor stories. It shows
that
> there are long term survivors of GBM and there is no reason why
your
> husband can't be one of them.
>
> Best regards
> Lynda
>
> --- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@> wrote:
> >
> > Hi Lynda,
> > Thank you so much for sending through your email. We are in
> Auckland
> > and are waiting to have a mtg with a cancer Society nurse. Any
> > websites you can give me would be fantastic. Also it is
wonderfull
> > to know that you are living a happy life long after your surgery.
> >
> > Regards
> > Heather
> >
> > --- In nzbraintumour@yahoogroups.com, "Tse Family" <tsetribe@>
> > wrote:
> > >
> > > Hi Heather,
> > > Sorry to hear about your husbands diagnosis It is a real shock
> > isn't
> > > it ... hard to describe in words. I know I was stunned and
> > devastated
> > > when I got my news. I also have a GBM grade4. Firstly I will
> say,
> > that
> > > having a positive attitude is a great way to start! I always
> say
> > that
> > > old mantra "accept the diagnosis but reject the prognosis".
> > > Those Doctors can only quote statistics at us because that is
> > their
> > > job to be matter-of -fact and blunt . They say what they
> say"to
> > not
> > > give any false hope" which is a load of rubbish as hope is
> NEVER
> > > false!
> > > I had my surgery for my GBM on 9/3/06 and am well and living a
> > full
> > > and happy life. I get more tired than I used to do but life
for
> me
> > is
> > > pretty good.
> > > At this point in you and your husbands journey it probably
pays
> to
> > > seek out as much info as you can get. If you both live in a
> major
> > city
> > > then the Cancer Society is a good place to start. They have a
> lot
> > of
> > > books and some run support groups. We are in Wellington and
the
> > Cancer
> > > Society here runs groups. They also have a fantastic library
> with
> > some
> > > very good books.If you wish I can send you a list of web-sites
> > > that we have found useful. Some also have very positive
survivor
> > > stories that make you want to tell those Doctors precisely
what
> > they
> > > can do with their statistics!
> > > Meantime it is good that you've found this site. We have found
> it
> > very
> > > helpful and it is nice to know that there are other going
> through
> > the
> > > same things as you.
> > > I hope that the next phase of your husbands treatment goes
well.
> > >
> > > All the Best,
> > >
> > > Lynda Tse
> > > --- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@> wrote:
> > > >
> > > > Hi Everyone,
> > > > My husband has just had a tumour removed from the front
right
> > side.
> > > > (2wks ago),and we have just found out its a Glioblastoma IV.
> We
> > are
> > > > trying to stay positive, but feels like being trapped in a
> > nightmare
> > > > and not being able to wake up. We feel overwhelmed by info
> from
> > > > Specilists, plus their wonderfull positive prognoses (not!)
Any
> > > advise
> > > > from thoose who remember the start of their journey, would
be
> so
> > > > helpfull right now.
> > > >
> > > > Heather
> > > >
> > >
> >
>