Hi Heather,

My husband has a brain tumor and we are in pukekohe, so if you want to talk or catch up we are more than willing to come through or whatever is easiest.

Take care

kath
--- On Fri, 6/27/08, dmha93 <dmha93@...> wrote:

From: dmha93 <dmha93@...>
Subject: [nzbraintumour] Re: New Member!
To: nzbraintumour@yahoogroups.com
Date: Friday, June 27, 2008, 3:28 AM

Hi Lynda,
Thank you so much for sending through your email. We are in Auckland
and are waiting to have a mtg with a cancer Society nurse. Any
websites you can give me would be fantastic. Also it is wonderfull
to know that you are living a happy life long after your surgery.

Regards
Heather

--- In nzbraintumour@ yahoogroups. com, "Tse Family" <tsetribe@.. .>
wrote:
>
> Hi Heather,
> Sorry to hear about your husbands diagnosis It is a real shock
isn't
> it ... hard to describe in words. I know I was stunned and
devastated
> when I got my news. I also have a GBM grade4. Firstly I will say,
that
> having a positive attitude is a great way to start! I always say
that
> old mantra "accept the diagnosis but reject the prognosis".
> Those Doctors can only quote statistics at us because that is
their
> job to be matter-of -fact and blunt . They say what they say"to
not
> give any false hope" which is a load of rubbish as hope is NEVER
> false!
> I had my surgery for my GBM on 9/3/06 and am well and living a
full
> and happy life. I get more tired than I used to do but life for me
is
> pretty good.
> At this point in you and your husbands journey it probably pays to
> seek out as much info as you can get. If you both live in a major
city
> then the Cancer Society is a good place to start. They have a lot
of
> books and some run support groups. We are in Wellington and the
Cancer
> Society here runs groups. They also have a fantastic library with
some
> very good books.If you wish I can send you a list of web-sites
> that we have found useful. Some also have very positive survivor
> stories that make you want to tell those Doctors precisely what
they
> can do with their statistics!
> Meantime it is good that you've found this site. We have found it
very
> helpful and it is nice to know that there are other going through
the
> same things as you.
> I hope that the next phase of your husbands treatment goes well.
>
> All the Best,
>
> Lynda Tse
> --- In nzbraintumour@ yahoogroups. com, "dmha93" <dmha93@> wrote:
> >
> > Hi Everyone,
> > My husband has just had a tumour removed from the front right
side.
> > (2wks ago),and we have just found out its a Glioblastoma IV. We
are
> > trying to stay positive, but feels like being trapped in a
nightmare
> > and not being able to wake up. We feel overwhelmed by info from
> > Specilists, plus their wonderfull positive prognoses (not!)Any
> advise
> > from thoose who remember the start of their journey, would be so
> > helpfull right now.
> >
> > Heather
> >
>