Hi Heather

Here are 3 websites which I found helpful when first diagnosed:

http://www.virtualtrials.com/

http://www.abta.org/

http://www.braintumor.org/

On these websites there are links to survivor stories. It shows that
there are long term survivors of GBM and there is no reason why your
husband can't be one of them.

Best regards
Lynda

--- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@...> wrote:
>
> Hi Lynda,
> Thank you so much for sending through your email. We are in
Auckland
> and are waiting to have a mtg with a cancer Society nurse. Any
> websites you can give me would be fantastic. Also it is wonderfull
> to know that you are living a happy life long after your surgery.
>
> Regards
> Heather
>
> --- In nzbraintumour@yahoogroups.com, "Tse Family" <tsetribe@>
> wrote:
> >
> > Hi Heather,
> > Sorry to hear about your husbands diagnosis It is a real shock
> isn't
> > it ... hard to describe in words. I know I was stunned and
> devastated
> > when I got my news. I also have a GBM grade4. Firstly I will
say,
> that
> > having a positive attitude is a great way to start! I always
say
> that
> > old mantra "accept the diagnosis but reject the prognosis".
> > Those Doctors can only quote statistics at us because that is
> their
> > job to be matter-of -fact and blunt . They say what they
say"to
> not
> > give any false hope" which is a load of rubbish as hope is
NEVER
> > false!
> > I had my surgery for my GBM on 9/3/06 and am well and living a
> full
> > and happy life. I get more tired than I used to do but life for
me
> is
> > pretty good.
> > At this point in you and your husbands journey it probably pays
to
> > seek out as much info as you can get. If you both live in a
major
> city
> > then the Cancer Society is a good place to start. They have a
lot
> of
> > books and some run support groups. We are in Wellington and the
> Cancer
> > Society here runs groups. They also have a fantastic library
with
> some
> > very good books.If you wish I can send you a list of web-sites
> > that we have found useful. Some also have very positive survivor
> > stories that make you want to tell those Doctors precisely what
> they
> > can do with their statistics!
> > Meantime it is good that you've found this site. We have found
it
> very
> > helpful and it is nice to know that there are other going
through
> the
> > same things as you.
> > I hope that the next phase of your husbands treatment goes well.
> >
> > All the Best,
> >
> > Lynda Tse
> > --- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@> wrote:
> > >
> > > Hi Everyone,
> > > My husband has just had a tumour removed from the front right
> side.
> > > (2wks ago),and we have just found out its a Glioblastoma IV.
We
> are
> > > trying to stay positive, but feels like being trapped in a
> nightmare
> > > and not being able to wake up. We feel overwhelmed by info
from
> > > Specilists, plus their wonderfull positive prognoses (not!)Any
> > advise
> > > from thoose who remember the start of their journey, would be
so
> > > helpfull right now.
> > >
> > > Heather
> > >
> >
>