Hi Heather,
Sorry to hear about your husbands diagnosis It is a real shock isn't
it ... hard to describe in words. I know I was stunned and devastated
when I got my news. I also have a GBM grade4. Firstly I will say, that
having a positive attitude is a great way to start! I always say that
old mantra "accept the diagnosis but reject the prognosis".
Those Doctors can only quote statistics at us because that is their
job to be matter-of -fact and blunt . They say what they say"to not
give any false hope" which is a load of rubbish as hope is NEVER
false!
I had my surgery for my GBM on 9/3/06 and am well and living a full
and happy life. I get more tired than I used to do but life for me is
pretty good.
At this point in you and your husbands journey it probably pays to
seek out as much info as you can get. If you both live in a major city
then the Cancer Society is a good place to start. They have a lot of
books and some run support groups. We are in Wellington and the Cancer
Society here runs groups. They also have a fantastic library with some
very good books.If you wish I can send you a list of web-sites
that we have found useful. Some also have very positive survivor
stories that make you want to tell those Doctors precisely what they
can do with their statistics!
Meantime it is good that you've found this site. We have found it very
helpful and it is nice to know that there are other going through the
same things as you.
I hope that the next phase of your husbands treatment goes well.
All the Best,
Lynda Tse
--- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@...> wrote:
>
> Hi Everyone,
> My husband has just had a tumour removed from the front right side.
> (2wks ago),and we have just found out its a Glioblastoma IV. We are
> trying to stay positive, but feels like being trapped in a nightmare
> and not being able to wake up. We feel overwhelmed by info from
> Specilists, plus their wonderfull positive prognoses (not!)Any
advise
> from thoose who remember the start of their journey, would be so
> helpfull right now.
>
> Heather
>