Search the web
Sign In
New User? Sign Up
nzbraintumour · NZ Brain Tumour Support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New Member!   Message List  
Reply | Forward Message #1493 of 1806 |
Re: New Member!

Hi Heather,
Sorry to hear about your husbands diagnosis It is a real shock isn't
it ... hard to describe in words. I know I was stunned and devastated
when I got my news. I also have a GBM grade4. Firstly I will say, that
having a positive attitude is a great way to start! I always say that
old mantra "accept the diagnosis but reject the prognosis".
Those Doctors can only quote statistics at us because that is their
job to be matter-of -fact and blunt . They say what they say"to not
give any false hope" which is a load of rubbish as hope is NEVER
false!
I had my surgery for my GBM on 9/3/06 and am well and living a full
and happy life. I get more tired than I used to do but life for me is
pretty good.
At this point in you and your husbands journey it probably pays to
seek out as much info as you can get. If you both live in a major city
then the Cancer Society is a good place to start. They have a lot of
books and some run support groups. We are in Wellington and the Cancer
Society here runs groups. They also have a fantastic library with some
very good books.If you wish I can send you a list of web-sites
that we have found useful. Some also have very positive survivor
stories that make you want to tell those Doctors precisely what they
can do with their statistics!
Meantime it is good that you've found this site. We have found it very
helpful and it is nice to know that there are other going through the
same things as you.
I hope that the next phase of your husbands treatment goes well.

All the Best,

Lynda Tse
--- In nzbraintumour@yahoogroups.com, "dmha93" <dmha93@...> wrote:
>
> Hi Everyone,
> My husband has just had a tumour removed from the front right side.
> (2wks ago),and we have just found out its a Glioblastoma IV. We are
> trying to stay positive, but feels like being trapped in a nightmare
> and not being able to wake up. We feel overwhelmed by info from
> Specilists, plus their wonderfull positive prognoses (not!)Any
advise
> from thoose who remember the start of their journey, would be so
> helpfull right now.
>
> Heather
>





Fri Jun 27, 2008 2:07 am

tsetribe
Offline Offline
Send Email Send Email

Forward
Message #1493 of 1806 |
Expand Messages Author Sort by Date

Hi Everyone, My husband has just had a tumour removed from the front right side. (2wks ago),and we have just found out its a Glioblastoma IV. We are trying to...
dmha93
Online Now Send Email
Jun 26, 2008
7:19 pm

Hi Heather, Sorry to hear about your husbands diagnosis It is a real shock isn't it ... hard to describe in words. I know I was stunned and devastated when I...
Tse Family
tsetribe
Offline Send Email
Jun 27, 2008
2:07 am

Hi Lynda, Thank you so much for sending through your email. We are in Auckland and are waiting to have a mtg with a cancer Society nurse. Any websites you can...
dmha93
Online Now Send Email
Jun 27, 2008
2:28 am

Hi Heather Here are 3 websites which I found helpful when first diagnosed: http://www.virtualtrials.com/ http://www.abta.org/ http://www.braintumor.org/ On...
Tse Family
tsetribe
Offline Send Email
Jun 27, 2008
3:01 am

Hi Lynda, Thanks a lot I will check them out. Regards Heather P.S: Must have been having a blonde moment when I sent the 1st email. hubby's name is Dennis. ......
dmha93
Online Now Send Email
Jun 27, 2008
9:40 pm

Hi Heather, My husband has a brain tumor and we are in pukekohe, so if you want to talk or catch up we are more than willing to come through or whatever is...
Kathryn Mills
kathmills_nz
Offline Send Email
Jun 27, 2008
3:50 am

Hi Kath, Thanks for that, I will have a chat to Dennis this weekend. Can only send emails from work at the moment. Regards Heather -- In...
dmha93
Online Now Send Email
Jun 27, 2008
9:42 pm

Hi Heather, Sorry to hear you are joining our exclusive club. Fortunately you have come to the right site for information and very importantly, much needed...
doncederwall
doncedes@...
Send Email
Jun 29, 2008
12:54 am

Hi Cathy, This is the club we never thought we would be joining. Life can be incredibly strange sometimes.We have just had had a mtg with a Cancer Society...
Heather Linncoln
dmha93
Online Now Send Email
Jul 3, 2008
5:11 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help