Hi Diane

Just wondering if Dr Moodie sent you the minutes from their cancer
sub-committee meeting yet?

I see Pharmac are under the gun again from the Herceptin ladies:
http://www.stuff.co.nz/sundaystartimes/4413420a6442.html

Chris
Wellington

--- In nzbraintumour@yahoogroups.com, DanZac <danzac@...> wrote:
>
> Good on you Diane, well done on the follow up with Dr Moody asking
for the minutes.
>
> It is VERY pleasing to see that FINALLY a group of Oncologists have
deemed it worthy to put in their own application to have the access to
temozolomide widened. Must say it took them long enough !! The
patients have certinally done their bit.
>
> Can't type for too long as have slipped disc in back and in heaps of
pain for the past week.
>
> Best wishes to all, apologies for being a bit quiet lately
>
> think of you all often
>
> xx Penny
>
>
> ----- Original Message -----
> From: Tse Family
> To: nzbraintumour@yahoogroups.com
> Sent: Thursday, January 31, 2008 8:25 AM
> Subject: [nzbraintumour] Re: 2007-12-30 Diane Toscano re
temozolomide.pdf
>
>
> Hi Diane
>
> Good on you for being pro-active and writing in to Pharmac. Can you
> share a copy of the final minutes with the group when you receive it -
> I am really interested in what they have to say.
>
> Lynda is currently doing very well. She is still taking metronomic
> (daily) Temodal, which we are buying privately at full price, now in
> her 13th cycle. It is tough financially but we feel it is worth it. If
> there is any glimmer of hope that Pharmac will relax their
> restrictions on funding then we will get right in behind it.
>
> Happy new year to everyone on the list - hope you are enjoying the
> great summer weather, whereever you are.
>
> Chris
> Wellington
> h/o Lynda, dx GBM in Mar 2006
>
> --- In nzbraintumour@yahoogroups.com, "Diane" <diaton@> wrote:
> >
> > Hi to everyone,
> > Just wanted to forward onto you a reply that I received after
> writing to the Board of Pharmac - I wanted to start my New Year off by
> being positive and saying just how I felt about their decision on the
> 6mthly release of Temodar here in New Zealand, and for only newly
> diag. BT at that.. I felt much better just getting it off my chest,
> and did wonder if I would get a reply. I had read where they were
> making a decision in the New Year, but felt that the odd letter
> writing would not go astray, as I myself have felt so strongly about
> this, with my Colette having had Temodar for 18mths with her
> treatments in the States. Mind you the reply from Dr. Moody told us
> nothing that we did not already know, but he did reply which was
> something that I thought might not happen.
> >
> > I have asked Dr. Moody for a copy of the final minute as he has
> offered to send me. We will all be waiting for their decision I am
sure.
> >
> > Thinking of you all , and the struggles that the New Year brings for
> so many. On a more positive note, stay strong, love lots and take
care.
> >
> > Diane
> > mother of Colette
> > Oligodendroglioma 3
> > diag. '98
> >
>