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Temadol   Message List  
Reply | Forward Message #1418 of 1805 |
Re: [nzbraintumour] Temadol

 Hi there Kath,
Colette kept on taking it for the whole 18mths - even though she had no complications or regrowth............. but I do realise that her situation is quite different with her living in the USA.   I know that is hard here in NZ because of the cost involved - but we have to hope that it is released soon for a longer time frame.  Also worth  finding out, that if they DO release it for a longer time frame, and one  has gone off it after a certain period of  time, will  you then be able to go back onto it again up to the new time frame allowed for   ........ thinking of you this week with your scan coming up - my positive thoughts are with you both.   Take care.
 
Diane/mother of Colette
Oligodendroglioma 3  
A 9yr survivor 
 
 
----- Original Message -----
Sent: Saturday, February 02, 2008 10:27 PM
Subject: [nzbraintumour] Temadol

Hi everyone,
Just a quick question for those that have had temadol.....Once the
first 6 month cycle has finished, and the results are good did you keep
on taking it? Or did you wait for more growth? I was just wondering.
Nick has his scan this week and results of it next week.
Thanks
Kath
Sat Feb 2, 2008 9:53 am

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toscanodiane
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Forward 		Message #1418 of 1805 |
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Hi everyone, Just a quick question for those that have had temadol.....Once the first 6 month cycle has finished, and the results are good did you keep on... 		Kath McNamara
kathmills_nz
Offline Send Email 		Feb 2, 2008
9:27 am

Hi there Kath, Colette kept on taking it for the whole 18mths - even though she had no complications or regrowth............. but I do realise that her...
Diane
toscanodiane
Offline Send Email 		Feb 2, 2008
9:52 am

Hi Kath Sorry for late reply. Lynda has been on Temodal for 19 cycles now - 6 cycles standard therapy plus 13 cycles of metronomic (daily) Temodal. Our...
Tse Family
tsetribe
Offline Send Email 		Feb 24, 2008
4:49 am

Hi Chris, Thankyou for your email. Nicks results showd no shrinkage and no growth. So we have decided to stay with temadol even though the cost is a bugger!...
Kathryn Mills
kathmills_nz
Offline Send Email 		Feb 24, 2008
7:52 am

Hi Kath We were going to get a range of quotes but in the end our local chemist said he would give it to us with discounted margin and dispensing charge so we...
Tse Family
tsetribe
Offline Send Email 		Feb 24, 2008
9:32 am

HI Chris / Lynda and any others taking Temodal (temozolomide) on an unsubsidised basis, maybe some things to investigate to ease the financial pressure. a.....
DanZac
danzac21
Offline Send Email 		Feb 25, 2008
11:08 am
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