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Hi to everyone,
Just wanted to forward onto you a reply that I received after writing to the Board of Pharmac - I wanted to start my New Year off by being positive and saying just how I felt about their decision on the 6mthly release of Temodar here in New Zealand, and for only newly diag. BT at that.. I felt much better just getting it off my chest, and did wonder if I would get a reply. I had read where they were making a decision in the New Year, but felt that the odd letter writing would not go astray, as I myself have felt so strongly about this, with my Colette having had Temodar for 18mths with her treatments in the States. Mind you the reply from Dr. Moody told us nothing that we did not already know, but he did reply which was something that I thought might not happen.
I have asked Dr. Moody for a copy of the final minute as he has offered to send me. We will all be waiting for their decision I am sure.
Thinking of you all , and the struggles that the New Year brings for so many. On a more positive note, stay strong, love lots and take care.
Diane
mother of Colette
Oligodendroglioma 3
diag. '98
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