----- Original Message -----

From: Paddy and steph

To: nzbraintumour@yahoogroups.com

Sent: Monday, October 08, 2007 12:59 PM

Subject: [nzbraintumour] AA3 -radiation only

Hi there, I wonder if anyone can tell me what the best line of defence is regarding temadol. At the moment I have just finished 6 weeks of radiation, luckily with no side effects only a bit less hair from when I started. Funding through the public health system over here in N.Z. for an AA3 tumour is only given if the tumour should reoccur which just seems crazy to me as I would have thought to throw everything at it especially since I had a complete surgical resection of it, but no they would rather wait to see if its going to recur first. Maybe they think there is no need to make me sick taking chemo if there is nothng visible to treat, I really don't know.
How long should I leave it before I look into funding it myself?, is the an effective period after radiation to use temodal in or should I have taking it through radiation. Is there a timeframe after radiation that is most effective for using temodal within? I mean is starting it 6 months after radiation too late for an effective result. I hav'nt really had a lot of direction from my oncologist, and to be quite honest she is'nt very positive about the whole matter at all.
Any words of wisdom, and where to go from here would be very much appreciated.

 

Thanks Paddy, N.Z.