Hi Paddy

My understanding is that Temodal is only subsidised in NZ for newly
diagnosed glioblastoma multiforme (GBM) and not for recurrent tumours
or AA3 tumours.

I'm sorry I can't offer any advice for your situation as Lynda has a
GBM and the treatment approach may be different for an AA3. However I
don't think you should let your oncologist get off so lightly, it is
her job to discuss your treatment options with you and answer all your
questions one by one.

Why not send her a list of questions and arrange a follow up
appointment with her to specifically discuss the answers and your
treatment options.

Chris
Wellington
h/o Lynda, 42, dx GBM IV (left posterior frontal lobe) in Mar 2006

--- In nzbraintumour@yahoogroups.com, "Paddy and steph"
<paddysteph@...> wrote:
>
> Hi there, I wonder if anyone can tell me what the best line of
defence is regarding temadol. At the moment I have just finished 6
weeks of radiation, luckily with no side effects only a bit less hair
from when I started. Funding through the public health system over
here in N.Z. for an AA3 tumour is only given if the tumour should
reoccur which just seems crazy to me as I would have thought to throw
everything at it especially since I had a complete surgical resection
of it, but no they would rather wait to see if its going to recur
first. Maybe they think there is no need to make me sick taking chemo
if there is nothng visible to treat, I really don't know.
> How long should I leave it before I look into funding it myself?, is
the an effective period after radiation to use temodal in or should I
have taking it through radiation. Is there a timeframe after radiation
that is most effective for using temodal within? I mean is starting it
6 months after radiation too late for an effective result. I hav'nt
really had a lot of direction from my oncologist, and to be quite
honest she is'nt very positive about the whole matter at all.
> Any words of wisdom, and where to go from here would be very much
appreciated.
>
> Thanks Paddy, N.Z.
>