Hi Paddy, I think pretty much the recommendation is Temodal
concurrently with radiation treatment. Penny may have more statstics?

Just as a reminder of our situation:
Bruce had a resection in March 04 for AA3, left frontal lobe.
At that stage it was recommended that he have radiation, but not
necessarily chemo, but it was his choice.
BRuce chose to have radiation and keep chemo as a backup if/when he
did have reocurrence.
His first post radiation MRI in Jan 05 showed residual tumour.
So back again for another resection.
This time PCV chemo was recommended due to Bruce being young (42) and
relatively fit& healthy.

Temodal wasn't an option back then and only just apprved by PHARMAC
mid last yr for newly diagnosed Gde 4 concurrently with radiation.
BRuce finished his chemo in Nov 2005, and all his MRI's have remained
stable and no evidence of any tumour.

It remains to be seen at this stage what our options are if
reoccurence.
Linda



--- In nzbraintumour@yahoogroups.com, "Paddy and steph"
<paddysteph@...> wrote:
>
> Hi there, I wonder if anyone can tell me what the best line of
defence is regarding temadol. At the moment I have just finished 6
weeks of radiation, luckily with no side effects only a bit less hair
from when I started. Funding through the public health system over
here in N.Z. for an AA3 tumour is only given if the tumour should
reoccur which just seems crazy to me as I would have thought to throw
everything at it especially since I had a complete surgical resection
of it, but no they would rather wait to see if its going to recur
first. Maybe they think there is no need to make me sick taking chemo
if there is nothng visible to treat, I really don't know.
> How long should I leave it before I look into funding it myself?,
is the an effective period after radiation to use temodal in or
should I have taking it through radiation. Is there a timeframe after
radiation that is most effective for using temodal within? I mean is
starting it 6 months after radiation too late for an effective
result. I hav'nt really had a lot of direction from my oncologist,
and to be quite honest she is'nt very positive about the whole matter
at all.
> Any words of wisdom, and where to go from here would be very much
appreciated.
>
> Thanks Paddy, N.Z.
>