welcome to the group. My name is Penny and my husband and I set this group up a couple of years ago.
You will find it is a very informative and supportive place.
Feel free to post photos or articles of interest on the site. And remember to scroll through old messages as there may be some ionteresting stuff we have discussed here in the past that may be of help to you.
Hi everyone, My husband was diagnosed with an oligodendroglioma 3 years ago. It has taken me that long to find this site! I wonder if there are any others out there with this tumour. Mac's tumour is inoperable, he has had the maximum radiotherapy, and had multiple seizures early on. Since then he has had several bouts of partial seizures and for that reason has never been able to cope without dex, although recently he was put on prednisone and now has 10mg per day. I don't think he will ever get any lower than that. Anyway, this is a great place to discuss what is happening, and we would love to hear from other like people.
Hi Penny,Dave and all you BT survivors and caregivers, We are new members and my husband Don is a 10 year survivor who has just been newly diagnosed as having...
doncederwall
doncedes@...
Mar 9, 2006 12:41 am
Hi Cat good to see you have made your way here from the CancerNZ site :-) have been wondering how you are both going? come back soon Linda ... has just ... ...
Hi Linda, How are you and the family? Have just sent my submission to Pharmac. Hope it helps. Have had a rough couple of months.(sounds like you haven't had it...
doncederwall
doncedes@...
Mar 10, 2006 7:35 am
Hi Cathy, so did Don have a resection again, and unable to to do chemo due to blood counts? I think Temozolomide is generally tolerated better. Will have to...
Dear Linda, When I hear the difficulties you are going through it makes my own situation feel better. Lots of strength and positive thoughts going out to you....
doncederwall
doncedes@...
Mar 10, 2006 7:17 pm
Hi everyone, My husband was diagnosed with an oligodendroglioma 3 years ago. It has taken me that long to find this site! I wonder if there are any others...
Hi Marj my husband Bruce is 44yrs and was diagnosed March 04 with a Gde 3 Anaplastic Astrocytoma. Had surgery March 05 plus radiation. Had 2nd surgery March 05...
Hi there Mary welcome to the group. My name is Penny and my husband and I set this group up a couple of years ago. You will find it is a very informative and...
Hi Marg, My Husband Don was diagnosed in 1996 with an Oligodendroglioma 11, at that stage it was deemed inoperable because of its location. It was infiltrating...
doncederwall
doncedes@...
Jul 3, 2007 11:05 pm
Hi Linda, I found this site in a message sent to the Cancer Society site. Cheers, Marg ... From: Linda To: nzbraintumour@yahoogroups.com Sent: Tuesday, July...
Hi Cathy, I know how hard it has been for you and for such a long time. I guess I have that all ahead of me. The doctors have been trying to reduce Mac's...
Dear Marg, Don was diagnosed at 47. He kept quite well for the first 6 years. Over that period he had the max dose of RT, 6 rounds of PCV and one round of...
doncederwall
doncedes@...
Jul 5, 2007 8:10 pm
Hi Marg, I am at preesently on holiday around New Zealand, before taking off for Brisbane tomorrow, but have been checking emails from wherever we are staying....
Having problems with message search?
Offline 
Send Email