Sorry for your loss, Terri. I will pray for his family. ~Sharon, Hunter's Mommy from CT To: ; From: momdmd@... Date: Fri, 29 Feb 2008 13:22:29 -0500 ...
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Hi everyone: A pretty quiet day today. Weekends are a good thing, you get a break from most of the doctors and tests. I ran back to the apartment to box up 7...
Man you guys can't get a break. Hoping the reflux issues can be resolved ASAP! Thanks for the updates by the way. Everyone in our house waits each evening...
Hi everyone! Today was a long day. MJ woke up with a definite rattle in her lungs but after early morning coughing, we got most of it out. We think it was...
I was wondering if any of you sleep with a LTV ventilator and also have sleep apnea? Whenever I tried sleeping with my LTV900 the Sleep Apnea alarm goes off,...
My daughter uess the LTV 950 for apnea. Its sleep apnea mainly but they have been unable to do a sleep study to confirm that since she is on the vent. Also she...
Mark, I have the same problem that's why I have a cuffed trach that I inflate at night. Problem solved even though I don't like the cuff. ... From: Mark To:...
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Hi everyone: Today was anything but dull and boring. Everyone let us sleep in this morning, so we are very thankful. Once MJ woke up, the fun began, NOT! ...
Daytona bike week is a big deal and it looks like a great time...Mark Great video by the way! blog: http://nodakwheeler.blogspot.com/ ... From: Scott F. Sands...
Dear MJ and Brenda, My gosh I just can't believe this crazy ordeal you guys have been through! Every day I read your updates and just shake my head and hope ...
Hi everyone: Another day but not much going on here. They just did blood work and the doctors played phone tag back and forth. All we found out at this...
Today was a day of sleeping, drugs, waiting and stress! MJ had a long night with the Zofran only working 60 to 90 minutes and then getting Phenergen 2 hrs...
Hi everyone: Today was an okay day but sort of stressful. First off, MJ is off Tolerex feeds and Pedialyte. Last night, she was off after the CT Scan since...
http://nodakwheeler.blogspot.com/ ____________________________________________________________________________________ Be a better friend, newshound, and ...
Hi everyone: I will sum up the day with what MJ said to Mueller this afternoon. Just imagine MJ staring you down, shaking her finger and tsking at you! ...
PUBLIC NOTICE Independent Care Waiver Public Notice For those of you who are interested in the issue of who can and cannot be served in the Independent Care...
Yeah you've definitely been there too long when the kitchen folks think you work there...LOL I'm sure MJ is so tired of the setbacks and ready to get the heck...
Hi everyone: Last night was rather stressful and we did sleep. We woke MJ up at noon. She was rather lethargic. They did a glucose level at 8am and it...
Hi everyone MJ had a pretty good day today. Today is day 42 which makes it 6 full weeks here. Her dad flew home to go back to work while her bowels start...
Check out my new blog post www.johnrsf.blogspot.com Peace, John There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) ...
http://www.scottsandsalive.com To receive SCOTT SANDS ALIVE blog updates by e-mail, simply follow this link: http://www.scottsandsalive.com/?page_id=49...
Hi everyone: Today was a backward waiting crazy sort of day. I got MJ up at noon and right away they came in to start feeds at 10cc but within 30 minutes,...
Hi Ladies~ We have found that if we put another filter in the circuit in front of the exhalation valve at neb time, all the gunk gets caught in the filter and...
Another day has come and gone and here we sit. Today was day 45. Today was not a good day for MJ. Today was just one of those days where you feel old and...
Hi everyone: Short update today, but here is the scoop! MJ now has atelectasis in her left lower lobe…a cold, from reflux, or just because of not feeling...
Hello everyone MJ had an up and down day today. No, we didn’t get up out of bed but just how she felt. Her belly feels better, as long as she is on her...
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