I want to welcome JoJo to the list! Jojo was featured in the Charleston Gazette article "Nursing Home Exiles" last September. To view that story again visit:...
http://tinyurl.com/ba7et This needs to start happening to nursing homes and any other kind of instiuition or facilities that are keepig people from living in...
Hi All, Bob Darden from the group sent this to me. http://www.prweb.com/releases/2006/2/prweb339861.htm Take care, Mark NPVSN Moderator ... Yahoo! Mail - Helps...
A friend of Joe Malone's asked something interesting on another group. He was wondering what there are for special vent alarms. He was talking about...
Thanks Mark, i'm glad that I found your group. The nursing facility that i'm at is about an hours drive away from my home in WV. I have been working with a...
Mark, does this week with MD patients? Message: 2 Date: Wed, 1 Feb 2006 06:34:21 -0800 (PST) From: Mark Boatman <nodakwheeler@...> Subject: vent weaning...
Kathy, I don't believe theres a benefit to MD folks. I thought it was an interesting article but who knows, could lead to positive things. You and you husband...
Hi, Was wondering if anybody saw last Thursday's episode of ER with James Wood's character having ALS? If you saw it what did you think? Take care, Mark NPVSN...
JoJo, That's terrible what WV has done to you and many others. Where were you living before the out of state nursing home? I have a great civil rights...
I did get to see the show. (Actually don't miss ER too often) and I thought it was well put together. In my opinion it raised a lot of great points for future...
Yep, leaving Feb 23 and returning March 2. I'm getting excited now. I have been concerned about Corey's nurses doing 12 hour shift but the only one that...
http://tinyurl.com/byot6 Anybody have vent troubles around cell phones? My folks and sister use their phones around me all the time and I've never had a...
Mark, Cell phones have never interfered w/my vent. Also, I believe the no use of cell phones in hospitals to be a myth too. I stay usually in the PICU or ...
Kimi, I think its a myth too but the hospitals around here are strict about no cell phones. It's maybe changing though. Anybody else seen people using cell...
I use the Pulmonetic Systems LTV 950 and I'm always using the cell phone or my wife is and it hasn't made a bit of difference to my vent. Also I've used the...
Kathy, Have a great getaway! Hope your going somewhere warm Take care, Mark NPVSN Moderator Kathy Clayton <irishrediowa@...> wrote: Yep, leaving Feb...
Hi all, I'm Nick, I've been on a trach and vent 24/7 since 1994. When relying on a ventilator for each breath 24/7 life is tenous on a good day. I am much...
I read they have thingies that go in-line on your ventilator tubes that make it sound special alarms or dial a pre-programmed number when disconnected? Where...
Hi Nick, Try www.google.com and type in "add-on ventilator alarms". Several sites come up, Gail in WI I read they have thingies that go in-line on your...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the npventsupport group. File : /Joe...
npventsupport@yahoogr...
Feb 7, 2006 8:03 pm
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Here is Joe Malone's eulogy written by his brother, Don. John Herrmann Thank you to everyone who has come here today to show affection for Joe and to celebrate...
What a beautiful tribute from his brother! I wish I had known Joe. Gail in WI Description : Joe Malone's Eulogy You can access this file at the URL: ...
Yes, the past two years has been a very big eye opener in how the government works, or doesn't work depending how you look at it. Every time I managed to...
Hi Nick, I'm glad to see you're in the group. I've read a lot about you over the past two years of doing my own research and felt encouraged by your victory! ...
Nick, So great that you've joined us. There are some of the members here including myself who are stuck in institutions. The advocacy you've done is a...
JoJo, Is any legal action pending with your situation or anybody elses? Would seem to me there would be grounds for some kind of action. Take care, Mark NPVSN...