Nichole, Thank you so much for thinking of this great idea. We appreciate your input so much! T. ... put our name, age, and diagnosis, or other info you might...
Ok, after much research, changing of the vents, checking tubing and everything we can think of we just found the culprit of Devin mysterious problem he's been...
Hi everyone: Two steps forward and one back is the theme of the day. Last night was an interesting night. MJ had a productive cough so we were taking use...
Keep hangin' in there MJ! Mark ... From: MJ Purk <TWEETYROLL88@...> To: smasupport@googlegroups.com; npventsupport@yahoogroups.com Sent: Friday, February...
As I mentioned on the other board I am glad you got your answer. We use shiley trachs but we use them over and over again for months. We just clean them with...
Hi everyone, Another late update, but you know how things go in a hospital. Never a dull moment. For part of the day, it just seems to drag and then you...
Yes, I realize I said it was Friday!! See, it is true, hospitals rob you of crucial brain cells. MJ Purk SMA type I+, 19 years old “It is not the critic...
Researchers Work To Perfect Tongue-Click Controller By Dave Reynolds, Inclusion Daily Express January 30, 2008 BRISTOL, ENGLAND--Last July, Inclusion Daily...
Last night I had a nurse who I don't see very often and she put a little bit
of salt into my humidifier to turn it into saline and perhaps lessen the
amount of...
I can see how that technique is too much different than a saline neub. I don't see a huge problem with doing that, just be very careful not to get too wet...
Hi Everyone, Did you know 1 in 8 women will be diagnosed w/breast cancer? My friend Robyn needs donations towards breast cancer research so hopefully these ...
Danette I dont see any reason not to, maybe others here do but I do know that some people get bottles or bags of saline just for that purpose instead of...
The only thing that concerns me is how does she know what concentration of saline ends up in your humidifier. I'd ask your RT what he or she recommends....
I am really dissappointed today. My new nurse didn't show up today. The agency called his home phone and cell phone and couldn't get a hold of him. They told...
Sorry for the delay in getting back to you Nichole. Well, see I am starting a web site called DisabilityVoiceSpace.us. Go ahead and look at it. It is about...
I have to reply this about Devin and his vent not breathing him. First of all, can you explain to us what you mean by his vent stops breathing him. Is the...
I had a problem with my LTV 800.. Well one day the turbine started making a much worse sound and very high pitched whine. With my hearing being so sensitive...
Yes that how does every one keep up on all these e-mail. If I stop emails through my group I lose track of every one. Then I get passed of emails. Has...
Yes, we have also had issues with them not showing up and I totally agree its very hard to get reliable nurses these days. We have had sleepnig nurses, no show...
wow Wisconsin has private duty nursing. People dependent on ventilators and get up to 24 hours of nursing. I have trouble finding people that are adult...
Well contact me either by my e-mail or my messenger ID. Also it goes for anyone who wants to have any say in DisabilityVoiceSpace write an article. Hey...
Sounds like a good idea Tim, DisabilityVoiceSpace neaaskmi@... wrote: It would be nice to know what states people are in, maybe they could then advocate...
But your ventilator still should of of alarmed Crystal A <devsmama02@...> wrote: Ok, after much research, changing of the vents, checking tubing and...
Well Medicaid says that you should get one every month. Have your Dr. Contact your insurance company say it needs it every month. Something to the effect...
I do my care differently, my spouse does part of it, and the other part is done from local PCA's on the list of the Center for Independent Living, or from...
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