Hi Nichole, Wow...you are an amazing mom to deal with all this with the nurse. Unfortunately we've learned here that just because a person has an RN or LPN...
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That is so scary! I dont see how you controlled youself after it was over, and not try to kill that nurse. That is crazy. Lack of good nursing care is one...
Boy, if that isn't the truth! And to be honest MD doesn't always mean a
whole lot either. The most important thing to me is that they are willing
to learn...
Danette your right on about the importance of medical people having a teachable spirit. We have all dealt with arrogant nurses and doctors that don't get the...
Scott, Happy New Year New and good luck on your 2008 to do list! Mark VSN Moderator blog: http://nodakwheeler.blogspot.com/ ... From: Scott F. Sands...
Hi everyone, I went ahead and ordered the spirometer (the one from the link Alan posted - thanks Alan!) for the mouthpiece and it came today. I also ordered a...
Well, they have those fancy telephone receiver coiled metal things which might be a little pricey. But if you don't mind the looks, there's always the good old...
Check out my new blog post www.johnrsf.blogspot.com Peace, John There is no cure for birth and death save to enjoy the interval. --George Santayana(1863-1952) ...
Nikki, I have a technical question concerning the mouthpiece you received with the spirometer. Is it completely hollow inside or is there a section inside...
Hi Alan, It does have the grid work like you are describing. The problem for me is that the mouthpiece is permanently connected to the blue flex tubing that it...
Nikki, I'm assuming that the mouthpiece and the blue tubing are different colors correct? I highly suspect that they might just be in really tight or slightly...
This was posted on the Trach Ties group....Mark http://www.nwa.com/corpinfo/aircares/about/kidcares.shtml blog: http://nodakwheeler.blogspot.com/ ... From:...
Nikki, I also use niv and am only of the vent for short periods of time. I use a pneumobelt during the day and a breeze mask at night with a volume vent. Have...
Hello: I would like to take my son to disney and I think we have found a reasonable flight,but...was wondering if anyone knows of any car rental companies ...
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I've checked before with the major car rental companies and they don't rent vehicles with lifts. Maybe it depends on the location but it may still be worth...
Thank you Donna for the information! I haven't tried the belt because the pulmo said it wouldn't work for the Congenital Central Hypoventilation Syndrome, but...
USDA's Rental Assistance Program From Steve Gold: USDA's Rental Assistance Program Information Bulletin #233 Many housing advocates for people with disability...
nikki who is your doctor? many doctors haven't even heard of the belt. if you don't live to far maybe i can let you try one of mine to see if it works for you....
Donna, He is a pulmo that specializes in neuromuscular disease. The MDA has said that if I would like to try the belt they have one I can use to see if I like...
You've Got an eCard! ? ? ? B4SMA has sent you an eCard created at One True Media. Show me my eCard! ? ? ? If clicking on the image or link does not work, copy...
Nikki, that is great that the clinic has one. No, I don't need to initiate a breath. I use the ltv 950 and just use volume mode and it gives me a set number of...
Hello Everyone:            I’m back! Bet most of you thought I’d disappeared from the face of the earth. Nope, I’ve just been away from the...
Hello, My name is Crystal. My son Devin is 5 years old, we live in Kingsport Tennessee. Devin has SMA type 1 and he is vent dependent. Dev was diagnosed with...
Hi Crystal, my name is Lori and my daughter Emma is 3 and is on the LTV 950 as well, she got put on it for apnea when she was aroudn 6 months old. Its nice to...
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Welcome, Crystal & Devin! My name is Sharon, and I am from CT. I have an incredible 27 month old, his name is Hunter Christian, and he has SMARD1 (Spinal...