Thanks or joining us Gyle (Ironstud 11).  I hope you will share with us your
situation and struggle 2 keep out of the nursing home.

Gyle has been givng the state of ND lots of hell to keep folks out of nursing
homes.  Our state govetnments have 2 keep hearing from us that nursing
homes are NO place like home.

Welcome again Gyle.

Mark

Thanks Larry!  Yeah it is frustrating to see Olmstead move so slowly.  I think
litigation against states not complying will be the only way to do it.


That's more than likely the only way for me to leave the nursng home.  States
aren't
doing a progressive job integrating folks with disabilities.  They need to be
accountable and the money needs to flow away from the nursing homes.  We need
MiCasa and Money Follows the Person legislation so badly.

The nursing home lobby is fightin a losing battle.  More people want to live in
real
homes and not "Facilities"  that warehouse us.

Mark



--- In npventsupport@yahoogroups.com, "Larry Kohout" <lkohout@m...> wrote:
> Well done Mark.  I just wish I understood why, when the Olmstead
> decision has stated it shall be so, there is still so much fighting
> required to make it happen.  I thought when that decision came down that
> the fighting was over, the decision had been made.  Now the states were
> going to have to comply.  ????????
>
> Peace, Larry
>
> Outgoing message was found virus free by Trend Micro's PC-cillin
>
> -----Original Message-----
> From: npventsupport@yahoogroups.com
> [mailto:npventsupport@yahoogroups.com] On Behalf Of Mark Boatman
> Sent: Tuesday, July 26, 2005 8:28 AM
> To: npventsupport@yahoogroups.com
> Subject: [npventsupport] Happy Birthday ADA
>
> Today's the 15th anniversary of the Americans with Disabilities Act.
> Just
> wanted to share this editorial I wrote which appears in my hometown
> paper
> today.
>
> HTTP://www.jamestownsun.com/main.asp?SectionID=2&SubSectionID=103&
> ArticleID=29854
>
> Take care,
>
> Mark
>
>
>
>
>
>
> Yahoo! Groups Links

Well done Mark.  I just wish I understood why, when the Olmstead
decision has stated it shall be so, there is still so much fighting
required to make it happen.  I thought when that decision came down that
the fighting was over, the decision had been made.  Now the states were
going to have to comply.  ????????

Peace, Larry

Outgoing message was found virus free by Trend Micro's PC-cillin

-----Original Message-----
From: npventsupport@yahoogroups.com
[mailto:npventsupport@yahoogroups.com] On Behalf Of Mark Boatman
Sent: Tuesday, July 26, 2005 8:28 AM
To: npventsupport@yahoogroups.com
Subject: [npventsupport] Happy Birthday ADA

Today's the 15th anniversary of the Americans with Disabilities Act.
Just
wanted to share this editorial I wrote which appears in my hometown
paper
today.

HTTP://www.jamestownsun.com/main.asp?SectionID=2&SubSectionID=103&
ArticleID=29854

Take care,

Mark






Yahoo! Groups Links

Try this cuz I think I goofed...mb

http://www.jamestownsun.com/Main.asp?SectionID=2&SubSectionID=103&ArticleID=2985\
4


--- Mark Boatman <nodakwheeler@...> wrote:

> Today's the 15th anniversary of the Americans with
> Disabilities Act.  Just
> wanted to share this editorial I wrote which appears
> in my hometown paper
> today.
>
>
HTTP://www.jamestownsun.com/main.asp?SectionID=2&SubSectionID=103&
> ArticleID=29854
>
> Take care,
>
> Mark
>
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

Today's the 15th anniversary of the Americans with Disabilities Act.  Just
wanted to share this editorial I wrote which appears in my hometown paper
today.

HTTP://www.jamestownsun.com/main.asp?SectionID=2&SubSectionID=103&
ArticleID=29854

Take care,

Mark

Lori,

Great to you see you signed up with us!  You make North Dakotan #4 on the
list :-)

Feel free to ask anything and participate any way you want.  Looks like a
cooler but beautiful day for the upper midwest today.  Take care everyone.

Mark

Hi Mark, thanks for the nice words. There is a reason for things
that happen like that in ones live. And the day for my diving is
coming fast. I love every minuet of that I work on my dream.

I well keep you all posted.

Take care from Scuba Matt.




--- In npventsupport@yahoogroups.com, "Mark Boatman"
<nodakwheeler@y...> wrote:
> Matt,
>
> Sometimes a tragic event focuses on the importanace of
accomplishing what we
> want to acheive in life.  I'm glad scuba diving is that thing for
you.  Takes alot of
> courage to attempt something like that.  Keep us posted on your
progress.
>
> Have a good day.
>
> Mark
>
> --- In npventsupport@yahoogroups.com, "Matt Johnston"
<roadrunnermatt@y...>
> wrote:
> > Thanks for the welcome Mark.  I have loved scuba diving my whole
life
> > but never took any action on it until my nurse/best friend died
> > tragically.  I realized that life is too short and you need to
go for
> > your dreams.
> > Talk to you later.
> > Matt

This site has a real good brochure on air travel for vent users.
Check it out at
http://www.worldpompe.org/FlyingwithaventintheUSA.pdf  I added to the
links
section of this group as well.

Take care,

Mark

These look interesting.  Anybody use anything different than the traditional
trach ties?  I've always used the Dale ties.

http://lifestreamedical.com/services.htm

Take care,

Mark

Ok gotcha.  I thought it was close.  I have relatives
in Stillwater.

take care,

Mark

webpage: http://www.geocities.com/nodakwheeler

Hold fast to dreams for if dreams die life is a
broken-winged bird that cannot fly. – Langston Hughes

--- Angelique Novak <anovak@...> wrote:

> It's about 40 minutes north of Minneapolis.
> -Angie
>
> Mark Boatman wrote:
>
> > Angie,
> >
> > Great to see you were able to sign up.  Is Andover
> a suburb of the cities?  I've heard
> > of it before but just can't remember where it's
> at.  I live 100 miles due west of
> > Fargo.  Have a great day and so glad your here.
> >
> > Mark
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
>
>


__________________________________________________
Do You Yahoo!?
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It's about 40 minutes north of Minneapolis.
-Angie

Mark Boatman wrote:

> Angie,
>
> Great to see you were able to sign up.  Is Andover a suburb of the cities? 
I've heard
> of it before but just can't remember where it's at.  I live 100 miles due west
of
> Fargo.  Have a great day and so glad your here.
>
> Mark
>
>
> Yahoo! Groups Links
>
>
>
>

Hi Alan and thanks for joining us.  Look forward to hearing your input.  Want to
let you guys you that Alan has a great ALS/MD website he put together and
maintains.  It's at http://www.users.qwest.net/~grossmanalanshel/

Take care everybody and have a great day!

Mark

Angie,

Great to see you were able to sign up.  Is Andover a suburb of the cities?  I've
heard
of it before but just can't remember where it's at.  I live 100 miles due west
of
Fargo.  Have a great day and so glad your here.

Mark

Matt,

Sometimes a tragic event focuses on the importanace of accomplishing what we
want to acheive in life.  I'm glad scuba diving is that thing for you.  Takes
alot of
courage to attempt something like that.  Keep us posted on your progress.

Have a good day.

Mark

--- In npventsupport@yahoogroups.com, "Matt Johnston" <roadrunnermatt@y...>
wrote:
> Thanks for the welcome Mark.  I have loved scuba diving my whole life
> but never took any action on it until my nurse/best friend died
> tragically.  I realized that life is too short and you need to go for
> your dreams.
> Talk to you later.
> Matt

Thanks for the welcome Mark.  I have loved scuba diving my whole life
but never took any action on it until my nurse/best friend died
tragically.  I realized that life is too short and you need to go for
your dreams.
Talk to you later.
Matt

Hey Matt,

Welcome to the group.  Great to have another fellow
DMDer on here.  I was wondering what sparked your
interest in scuba diving.  What a fantastic thing to
try.

Take care,

Mark

--- Matt Johnston <roadrunnermatt@...> wrote:

> Hi everyone,
>
> I was just referred here from Mark Boatman and
> thought I'd do a brief
> introduction.  I am 28 years old with DMD, been on a
> trach and vent
> for the past 10 yesrs.  I have been working on my
> life long dream to
> scuba dive recently.  So far I have been able to go
> underwater about 1
> ft deep.  To learn more, so I don't ramble on, you
> can go check out my
> profile for links to my web sites if you like!  I
> look forward to
> getting to know you all and to contribute to the
> group.  Take care!
>
> Matt
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

Hi everyone,

I was just referred here from Mark Boatman and thought I'd do a brief
introduction.  I am 28 years old with DMD, been on a trach and vent
for the past 10 yesrs.  I have been working on my life long dream to
scuba dive recently.  So far I have been able to go underwater about 1
ft deep.  To learn more, so I don't ramble on, you can go check out my
profile for links to my web sites if you like!  I look forward to
getting to know you all and to contribute to the group.  Take care!

Matt

Thought i'd pass on.  A cool concept.

Take care,

Mark Boatman
webpage: http://www.geocities.com/nodakwheeler
blog: http://nodakwheeler.blogspot.com/

Hold fast to dreams for if dreams die life is a
broken-winged bird that cannot fly. – Langston Hughes

Note: forwarded message attached.





__________________________________
Do you Yahoo!?
Yahoo! Mail - You care about security. So do we.
http://promotions.yahoo.com/new_mail

Hi,

Thought I would pass on this great article on alternative controls for power
chairs.
It's at http://www.mdausa.org/publications/Quest/q115wheelturns.cfm

What kind of controls do you guys use?  I use a sip and puff and it works well
for me.
Enjoy the article and have a great day.

Mark

Boy Mark, I don't know but it sounds like it is going to be costly.  I'd
try to go back to J.H. Emerson and ask them if they are aware of any
models that do work with their equipment.  By the way, since it is
likely that it will be expensive, you might try finding a rental company
that has one once you find a model number.

Peace, Larry

The outgoing message was scanned with Trend Micro PC-cillion and found
virus free.

-----Original Message-----
Here's an update on my quest for a power inverter.
First off my main piece of equipment I want to run off
the inverter is the Cough Assist.  I emailed the Cough
Assist folks and I just got their reply.

They said the CoughAssist requires a true-sine-wave
inverter with a minimum of 250 watts.  They said the
CoughAssist will not function properly with a typical
square-wave or modified square-wave inverter.

Anybody know where I can get a 250 watt true-sine-wave
inverter that can plug into a cigarette lighter?  Any
help would be appreciaed.

Here's an update on my quest for a power inverter.
First off my main piece of equipment I want to run off
the inverter is the Cough Assist.  I emailed the Cough
Assist folks and I just got their reply.

They said the CoughAssist requires a true-sine-wave
inverter with a minimum of 250 watts.  They said the
CoughAssist will not function properly with a typical
square-wave or modified square-wave inverter.

Anybody know where I can get a 250 watt true-sine-wave
inverter that can plug into a cigarette lighter?  Any
help would be appreciaed.

Mark Boatman



____________________________________________________
Sell on Yahoo! Auctions – no fees. Bid on great items.
http://auctions.yahoo.com/

Welcome to our online group!  Glad to have you participate.

I have a question for you.  What agency do you go through to get nursing/pca
care?
I'm trying to get care through Meritcare Home Health in Fargo but there are some
hurdles.

First they want me to have a pretty iron clad backup plan if their staff can't
show.  I've
never had to deal with something like this and i'm not sure what will be
adequate
enough.

The other thing is how much deciding will I be allowed in my care level.  I
don't think
all 24/7 needs to be an RN/LPN.  Some of the care I think could be done by
trained
pca's.  So many things to think over.

Any input you have for me would be great.

Take care,

Mark

Larry,

I use the LP10.  I mainly wanted to get the inverter
to run my Cough Assist machine.  I emailed Rob at J.H.
Emerson about how much wattage the Cough Assist draws.
  I'm awaiting his response.

Radio Shack looked like they had good ones but I will
check my local Napa and Carquest stores too.

Thanks for the advice and I'll keep you posted on what
I find out.

Take care,

Mark Boatman

--- Larry Kohout <lkohout@...> wrote:

> Well I was going to answer your question but I thing
> you got good
> answers from the [Vent List].  I'm not sure what
> vent you are using but
> there are several ways that you can power it in a
> car or van.  Talk to
> your vent supplier and find out how much power it
> draws in watts before
> you buy a DC/AC converter.  Just make sure that the
> converter will
> supply an adequate number of watts to power the vent
> and hopefully have
> enough power left over to also power a suction
> machine if that should be
> necessary.
>
> My Pulmonetic Systems LTV can be plugged directly
> into the cigar lighter
> with the proper cable. Of course they get $208 for
> that cable.  But I
> also have another battery that is used to jump start
> a car and it has a
> cigar lighter outlet on it and so it can also power
> my vent if needed.
> I have two suction machines, one is portable and has
> an internal battery
> that allows it to provide a pretty good suctioning.
>
> Peace, Larry
>
> The outgoing message was scanned with Trend Micro
> PC-cillion and found
> virus free.
>
> -----Original Message-----
> From: npventsupport@yahoogroups.com
> [mailto:npventsupport@yahoogroups.com] On Behalf Of
> Mark B.
> Sent: Thursday, July 07, 2005 8:18 AM
> To: TrachTies Listserve; Vent Users List; NPVSN; DMD
> Pioneers List
> Subject: [npventsupport] Power during travel?
>
> In August I will be traveling for the day and i'm
> wondering how I will get power when i'm on the road
> for my equipment if I need it.  Any ideas?
>
> Is there such a device to draw AC power from a
> running
> vehicle?
>
> Thanks,
>
> Mark Boatman
> webpage: http://www.geocities.com/nodakwheeler
> blog: http://nodakwheeler.blogspot.com/
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam
> protection around
> http://mail.yahoo.com
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>



____________________________________________________
Sell on Yahoo! Auctions – no fees. Bid on great items.
http://auctions.yahoo.com/

Well I was going to answer your question but I thing you got good
answers from the [Vent List].  I'm not sure what vent you are using but
there are several ways that you can power it in a car or van.  Talk to
your vent supplier and find out how much power it draws in watts before
you buy a DC/AC converter.  Just make sure that the converter will
supply an adequate number of watts to power the vent and hopefully have
enough power left over to also power a suction machine if that should be
necessary.

My Pulmonetic Systems LTV can be plugged directly into the cigar lighter
with the proper cable. Of course they get $208 for that cable.  But I
also have another battery that is used to jump start a car and it has a
cigar lighter outlet on it and so it can also power my vent if needed.
I have two suction machines, one is portable and has an internal battery
that allows it to provide a pretty good suctioning.

Peace, Larry

The outgoing message was scanned with Trend Micro PC-cillion and found
virus free.

-----Original Message-----
From: npventsupport@yahoogroups.com
[mailto:npventsupport@yahoogroups.com] On Behalf Of Mark B.
Sent: Thursday, July 07, 2005 8:18 AM
To: TrachTies Listserve; Vent Users List; NPVSN; DMD Pioneers List
Subject: [npventsupport] Power during travel?

In August I will be traveling for the day and i'm
wondering how I will get power when i'm on the road
for my equipment if I need it.  Any ideas?

Is there such a device to draw AC power from a running
vehicle?

Thanks,

Mark Boatman
webpage: http://www.geocities.com/nodakwheeler
blog: http://nodakwheeler.blogspot.com/

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com



Yahoo! Groups Links

Gale,

Welcome to our online group.  So glad you joined us and I look forward to your
input.  Take care.

Mark
webpage: http://www.geocities.com/nodakwheeler
blog: http://nodakwheeler.blogspot.com/ (7/7/2005)

In August I will be traveling for the day and i'm
wondering how I will get power when i'm on the road
for my equipment if I need it.  Any ideas?

Is there such a device to draw AC power from a running
vehicle?

Thanks,

Mark Boatman
webpage: http://www.geocities.com/nodakwheeler
blog: http://nodakwheeler.blogspot.com/

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

I like the term forced-air friends :-)  Thanks for
passig the word on to the folks you know.

Thanks,

Mark

--- Larry Kohout <lkohout@...> wrote:

> Hey Mark,
>
> Thanks for the welcome note.  I see we are still
> very small yet.  But I
> know there are more than four vent users in the
> upper mid west.  When I
> started our Post Polio support group six years ago
> there were only four
> of us too.  Now we have 156 members in five Chapters
> around the state.
> I think I'll pass the word along to a couple of me
> forced-air-friends
> and see if I can talk them into joining us.
>
> Peace, Larry
>
> The outgoing message was scanned with Trend Micro
> PC-cillion and found
> virus free.
>
> -----Original Message-----
> From: npventsupport@yahoogroups.com
> [mailto:npventsupport@yahoogroups.com] On Behalf Of
> Mark Boatman
> Sent: Wednesday, July 06, 2005 6:13 AM
> To: npventsupport@yahoogroups.com
> Subject: [npventsupport] Hi Larry
>
> Just wanted to give you a welcome Larry to our
> online group.  Great to
> have you aboard and I look forward to you sharing
> your insight with us.
>
> Take care,
>
> Mark Boatman
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>




____________________________________________________
Sell on Yahoo! Auctions – no fees. Bid on great items.
http://auctions.yahoo.com/

Hey Mark,

Thanks for the welcome note.  I see we are still very small yet.  But I
know there are more than four vent users in the upper mid west.  When I
started our Post Polio support group six years ago there were only four
of us too.  Now we have 156 members in five Chapters around the state.
I think I'll pass the word along to a couple of me forced-air-friends
and see if I can talk them into joining us.

Peace, Larry

The outgoing message was scanned with Trend Micro PC-cillion and found
virus free.

-----Original Message-----
From: npventsupport@yahoogroups.com
[mailto:npventsupport@yahoogroups.com] On Behalf Of Mark Boatman
Sent: Wednesday, July 06, 2005 6:13 AM
To: npventsupport@yahoogroups.com
Subject: [npventsupport] Hi Larry

Just wanted to give you a welcome Larry to our online group.  Great to
have you aboard and I look forward to you sharing your insight with us.

Take care,

Mark Boatman





Yahoo! Groups Links

Just wanted to give you a welcome Larry to our online group.  Great to
have you aboard and I look forward to you sharing your insight with us.

Take care,

Mark Boatman

Just wanted to welcome you guys to our group.  This message is also to test
and make sure things are working ok.

Anybody got plans for the 4th on Monday?  I'm gonna cookout with some
family.

Take care,

Mark Boatman