My blog has been updated. You may need to refresh your browser to see the update. http://nodakwheeler.blogspot.com Take care, Mark ... Yahoo! Music Unlimited...
Last night on the 10:00 p.m. KARE 11 news there was a story about a quadriplegic 26 year old man who isn't vented. His injury happened in 2001. Next July...
Angelique Novak
anovak@...
Dec 2, 2005 4:57 pm
233
My website at http://www.geocities.com/nodakwheeler has been updated. You will need to refresh your browser to see the changes. Take care, Mark ... Yahoo!...
Hi, I hope everyone is enjoying a safe, happy, and healthy holiday season. The group has been a little quiet lately and I've been thinking of an idea to expand...
Hi all, Mark invited me to join today and wanted me to post an introduction like all of you have, so here goes... My name is Chris Webb and I was born with...
Hi Chris, I would llike to welcome you to the group. I'm one of the few people here who don't use a vent, but my significant other, Dustin, does. He is 30 w/...
Chris, Hey man welcome to our litte but growing group, So glad to have you with us! You will find many great folks here to communicate with. It makes me...
Theresa, Good to hear from you! I'm sure you'll be able to give Chris some great advocacy information and advice. Congrats on the growing Pug pack by the way....
Chris, Welcome to our little virtual enclave on the Northern Plains. I'm so happy that Mark has found you and invited you to join the group. There are a...
Hi Theresa, Thanks so much for the welcome. Pugs and Rottis are cool dogs and I would love to own one or the other. I'd be very interested in any info that...
Mark, Thanks for inviting me to your group, it's great to be hear. I plan on being more active here than I am on DMD Pioneers. Before the Iron Lung I used a...
Larry, Thanks for the welcome. It sounds like your support group keeps you busy. I'm glad to hear that it is doing well. Mark didn't need to look far to...
Hi Chris Let me echo the sentiment as well-welcome to our group! My name is Inés Gaudet and I am presently living in Rochester, Minnesota. I am a little odd...
Bob here. I am wondering if, in some ways, an iron lung isn't better than a vent? It enables more natural breathing, and is less invasive. The cuirass is...
Robert Feinstein
harlynn@...
Dec 14, 2005 7:02 am
247
Larry, could you talk about the advantages of an iron lung, and cuirass, versus a vent? Are there advantages to one over the other? Is it a matter of taste?...
Robert Feinstein
harlynn@...
Dec 14, 2005 7:15 am
248
Bob, In my opinion being on the vent is far more better than being in an Iron Lung or Cuirass. The biggest advantage being that a vent is portable and can go...
Hi Ines, Thank you for the welcome. I do use Dragon NaturallySpeaking, but my voice gets tired after using it for extended periods of time or I get frustrated...
Hi Chris- I'm Angie Novak, (ventilator dependent quadriplegic since 1994), age 24, in Andover, MN. It's great to have you with us. I don't know how you...
Angelique Novak
anovak@...
Dec 14, 2005 7:45 pm
251
Hi Angie, Thanks for the welcome. I nearly did go insane being in the Iron Lung, which was why I decided to get trached. I was in it 18 hours a day. If it...
Chris, The iron lung would be the last option I would choose but I'd never criticize a person for pursing that. I just can't imagine laying in a tube all day...
http://nodakwheeler.blogspot.com My blog was updated today. Take care...Mark ... Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping...
Welcome, Chris. I am so happy that Mark invited you to the group. My son is Corey and he is 21 with DMD. He went on a vent two weeks before his 18th...
wow. My respiratory person at the medical supply place. Wallgreens health initiatives said there was a study. And most only change or clean once a month. I...
I am just wondering why he chose the iron lung. I thought those were only in museums. Chris, you are the person best talk about being in a iron lung? Chris,...
hello Kathy. I also have DMD and I am 33. Does your son talk online much. He would be a great addition to this group also. I went on my ventilator in...