npventsupport : Messages : 1838-1867 of 6077

http://www.lifenews.com/bio1703.html

A futile care update...

Take care,

Mark
VSN Moderator

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#1866

From: John Ashby <no33y22@...>
Date: Wed Aug 9, 2006 6:27 pm
Subject: Re: suction machine pressure settings

no33y22

Offline

I use an Eschmann suction machine.

Mark Boatman <nodakwheeler@...> wrote:

Annette,

What brand of machine do you have?

Take care,

Mark
VSN Moderator

amh <computerwheelie@neondsl.com> wrote:

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

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#1865

From: Mark Boatman <nodakwheeler@...>
Date: Wed Aug 9, 2006 2:14 pm
Subject: In search of a home

nodakwheeler

Online Now

http://tinyurl.com/lh9om

Another story on how my state treats its citizens who are in need.

Mark
VSN Moderator

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#1864

From: Mark Boatman <nodakwheeler@...>
Date: Wed Aug 9, 2006 3:12 am
Subject: Robot suit helps quadriplegic ascend mountain

nodakwheeler

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Mark
VSN Moderator

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#1863

From: Stephen King <stever_sking@...>
Date: Wed Aug 9, 2006 12:24 am
Subject: Re: suction machine pressure settings

stever_sking

Offline

Do you Yahoo!?
Everyone is raving about the all-new Yahoo! Mail Beta.

Same here.

Mark Boatman <nodakwheeler@...> wrote:

John,

I don't see a problem with having your suction setting on high. Is there a reason why your nurse thinks the setting is too high?

I currently use an older Devilbiss machine and it works ok. To get any decent suction my machine is turned as high as it goes.

Take care,

Mark
VSN Moderator

John Ashby <no33y22@yahoo.co.uk> wrote:

Thanks, I was thinking that but wasn't sure. I'm having problems with the nurse who visits " telling me its to high". Iv tried lower settings before and i have problems with my chest. John

amh <computerwheelie@neondsl.com> wrote:

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

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#1862

From: Mark Boatman <nodakwheeler@...>
Date: Wed Aug 9, 2006 12:23 am
Subject: Re: suction machine pressure settings

nodakwheeler

Online Now

Annette,

What brand of machine do you have?

Take care,

Mark
VSN Moderator

amh <computerwheelie@...> wrote:

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

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#1861

From: Mark Boatman <nodakwheeler@...>
Date: Wed Aug 9, 2006 12:20 am
Subject: Re: suction machine pressure settings

nodakwheeler

Online Now

John,

I don't see a problem with having your suction setting on high. Is there a reason why your nurse thinks the setting is too high?

I currently use an older Devilbiss machine and it works ok. To get any decent suction my machine is turned as high as it goes.

Take care,

Mark
VSN Moderator

John Ashby <no33y22@...> wrote:

Thanks, I was thinking that but wasn't sure. I'm having problems with the nurse who visits " telling me its to high". Iv tried lower settings before and i have problems with my chest. John

amh <computerwheelie@neondsl.com> wrote:

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

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#1860

From: "rebecca" <rebecca_wilson48@...>
Date: Tue Aug 8, 2006 11:41 pm
Subject: laura jackson

rebecca_wils...

Offline

hi does anyone have any information on laura jackson the girl from
livonia michigan who was left a quadriplegic cheers

#1859

From: John Ashby <no33y22@...>
Date: Tue Aug 8, 2006 6:30 pm
Subject: Re: suction machine pressure settings

no33y22

Offline

Thanks, I was thinking that but wasn't sure. I'm having problems with the nurse who visits " telling me its to high". Iv tried lower settings before and i have problems with my chest. John

amh <computerwheelie@...> wrote:

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

The all-new Yahoo! Mail goes wherever you go - free your email address from your Internet provider.

#1858

From: amh <computerwheelie@...>
Date: Tue Aug 8, 2006 6:23 pm
Subject: Re: suction machine pressure settings

computrwheelee

Offline

It depends...everyone is different.
I have mine set a bit on the high side to suck that gunk up.

I have one of the smaller suctions machines that they don't make any more.
I treat that thing like GOld.

annette

no33y22 wrote:
>
> Hi guys, i need a bit of advice on suction pressures, what should the
> pressures be? John
>
>

#1857

From: "no33y22" <no33y22@...>
Date: Tue Aug 8, 2006 4:47 pm
Subject: suction machine pressure settings

no33y22

Offline

Hi guys, i need a bit of advice on suction pressures, what should the
pressures be? John

#1856

From: Mark Boatman <nodakwheeler@...>
Date: Tue Aug 8, 2006 1:38 am
Subject: Burleson boy meets his idol, Kelly Clarkson

nodakwheeler

Online Now

http://www.cleburnetimesreview.com/local/local_story_219111649.html

Mark
VSN Moderator

Groups are talking. We´re listening. Check out the handy changes to Yahoo! Groups.

#1855

From: Mark Boatman <nodakwheeler@...>
Date: Tue Aug 8, 2006 1:36 am
Subject: Penn researchers use the abdomen to deliver oxygen to assist ailing lungs

nodakwheeler

Online Now

http://tinyurl.com/pfo6n

Very interesting story.

Take care,

Mark
VSN Moderator

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#1854

From: Ksmile96@...
Date: Mon Aug 7, 2006 7:54 pm
Subject: Re: Living Will - Examples Needed

ksmile96

Offline

MJ,

I have the form called The 5 Wishes. If you Google it, you can probably find a copy. Depending on what state you are in (or what state you wish it to be acknowledged) will dictate what you will have to do make it a legal document. The last page will tell you what state's recognize it and what you must do in each state to make it legal. Things I find helpful to include are a proxy who is well informed of you wishes, the exact definition of when you want to be a DNR, time length (if desired) on any treatment used to prolong your life while in PVS/incompetent/etc, and any wishes that you want that legally do not have to be honored (type of funeral, whether you want any type of religious "last rites," donate body to science, etc). The 5 Wishes has a section which include these and much more. Feel free to ask any ?'s.

Smiles,

Kimi

#1853

From: TWEETYROLL88@...
Date: Mon Aug 7, 2006 6:44 pm
Subject: Living Will - Examples Needed

bshanson68

Offline

Hi Everyone,

I'm working on my living will before I go to college. I was wondering if anyone would be willing to share with me (off the board or on) some or all of their requests in their living will. If you prefer to e-mail me privately, you can send it to TWEETYROLL88@...

Thanks!

MJ
18, SMA Super type I
"People are often unreasonable, illogical, and self-centered;
Forgive them anyway.
If you are kind, people may accuse you of selfish, ulterior motives;
Be kind anyway.
If you are successful, you will win some false friends and some true enemies;
Succeed anyway.
If you are honest and frank, people may cheat you;
Be honest and frank anyway.
What you spend years building, someone could destroy overnight;
Build anyway.
If you find serenity and happiness, they may be jealous;
Be happy anyway.
The good you do today, people will often forget tomorrow;
Do good anyway.
Give the world the best you have and it may just never be enough;
Give the world the best you have anyway.

You see, in the final analysis, it's all between you and God;
It was never between you and them anyway." ~Mother Teresa

http://www.caringbridge.com/ny/mjpurk - My Journal

http://www.our-sma-angels.com/Margaret/ - My Original Website

http://www.mjthesmaqueen.com/ - My New Website

http://www.our-sma-angels.com/b4sma/ - My Organization's Site

http://www.caringbridge.org/ny/b4sma/ - My Organization's Update Site

#1852

From: JoJo <jojo4xp@...>
Date: Mon Aug 7, 2006 2:46 pm
Subject: Medicare and home oxygen

jojo4xp

Offline

Someone told me that Medicare was going to stop
paying for home oxygen tanks and concentrators.
You would receive one concentrator but you are
responsible for maintenence etc.
Do any of you know if this is true or not?
I can't imagine The government taking away
people's oxygen but nothing surprises me anymore.

Take care,
JoJo

Web-nuts Help forum
http://web-nuts.com/forum/

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#1851

From: Mark Boatman <nodakwheeler@...>
Date: Sun Aug 6, 2006 2:26 pm
Subject: Re: I am back from vacation

nodakwheeler

Online Now

Christamae,

So glad you had a wonderful and memorable vacation! Can't wait to hear more details

Take care,

Mark
VSN Moderator

ldspeaker17 <ldspeaker85@...> wrote:

We are back! Disney was wonderful, fantastic, and magical. Many
fantastic memories and special moments. Of course there were mishaps,
equipment problems, RV issues, and injuries (me). But I expected
such. The trip was definitely worth it. An unexpected highlight was
seeing my best friend from Oklahoma-Katrina. I am planning on writing
a day by day play by play report. More to come later. Still
recovering from vacation induced exhaustion ...

Christamae

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#1850

From: "ldspeaker17" <ldspeaker85@...>
Date: Sat Aug 5, 2006 7:32 pm
Subject: I am back from vacation

ldspeaker17

Offline

We are back!  Disney was wonderful, fantastic, and magical.  Many
fantastic memories and special moments.  Of course there were mishaps,
equipment problems, RV issues, and injuries (me).  But I expected
such.  The trip was definitely worth it.  An unexpected highlight was
seeing my best friend from Oklahoma-Katrina.  I am planning on writing
a day by day play by play report.  More to come later.  Still
recovering from vacation induced exhaustion ...

Christamae

#1849

From: Mark Boatman <nodakwheeler@...>
Date: Sat Aug 5, 2006 1:44 pm
Subject: Girl hurt in crash longs to be home

nodakwheeler

Online Now

http://tinyurl.com/lhke5

Brittany is a brave young lady and thought I'd share her story. She has a Caring Bridge site at www.caringbridge.org/visit/brittany

Take care,

Mark
VSN Moderator

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#1848

From: "grant lowe" <d.lawe@...>
Date: Sat Aug 5, 2006 12:17 pm
Subject: Re: 40!

funkydonkey2002

Offline

hey way to go scott, i also have duchenne and i'll be 30 next month.
--- In npventsupport@yahoogroups.com, Scott Sands <scottsands@...>
wrote:
>
> Hi All,
>
> Just want to inform you all that today is my 40th birthday.
Duchenne
> can eat my shorts!
>
> Striving to survive,
>
> Scott Sands
>

#1847

From: Mark Boatman <nodakwheeler@...>
Date: Fri Aug 4, 2006 4:14 pm
Subject: Marriage Seminar.... <Funny Friday>

nodakwheeler

Online Now

Marriage Seminar....

While attending a marriage seminar on communication Wally and his wife Carolyn listened carefully as the counselor declared "It is essential that husbands and wives know the things that are important to each other."

He addressed the men, "Can you describe your wife's favorite flower?"

Wally leaned over, touched his wife's arm gently and whispered, " Pillsbury All-Purpose, isn't it?"

And thus began Wally's life of celibacy...

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#1846

From: Mark Boatman <nodakwheeler@...>
Date: Fri Aug 4, 2006 4:09 pm
Subject: Funny Friday

nodakwheeler

Online Now

I'd like to start something a bit new on the group and I welcome any input on this.

Starting today I'll be starting something called Funny Friday. On Fridays any member can post a clean or semi-clean joke or cartoon to the list. I think this a great way to get a good laugh before the weekend.

Take care and I look forward to seeing everybody jokes!

Mark
VSN Moderator

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#1845

From: Mark Boatman <nodakwheeler@...>
Date: Fri Aug 4, 2006 2:15 pm
Subject: Re: Spoke with John

nodakwheeler

Online Now

Bob,

Thanks so much for the update on John! I'm so happy he's able to speak but the road to total recovery I'm sure will take awhile. I've been thinking bout John alot and thank goodness he has a great family behind him.

Hope everybody is getting cooler weather this weekend and some relief from the terrible heat wave.

Thanks again Bob for the update!

Mark
VSN Moderator

Robert Feinstein <harlynn@...> wrote:

Hello, list friends; this is Bob in hot, hot NY. I just spoke via phone
to John in California and he is beginning to be able to speak. He told me
that he has a long way to go, and that he feels very weak, but I was able
to understand him without any difficulty. He is able to talk in very
short phrases and it is truly miraculous! He has a loving supportive
family. And to think his Mom told me the drs had recommended taking him
off life support; it is enough to make one shudder with fear!

I hope all of you listers are doing well and that you have
air-conditioning. I took a really, really, really bad fall about two
weeks ago, but am starting to recover; I actually broke a rib, but it
could have been a lot worse.

Warmest regards,
Bob

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Reply | Forward | Messages in this Topic (3)

#1844

From: countrygirl <splashfan2@...>
Date: Thu Aug 3, 2006 4:03 pm
Subject: Re: 40!

splashfan2

Offline

Happy Birthday Scott shows they aren't always right I
was given 2yrs by doctors 7 yrs ago and I'm not far
behind you I'll be 38 on the 13th.

Nancy

--- Scott Sands <scottsands@...>
wrote:

> Hi All,
>
> Just want to inform you all that today is my 40th
> birthday.  Duchenne
> can eat my shorts!
>
> Striving to survive,
>
> Scott Sands
>

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#1843

From: "Ines Gaudet" <inesita56@...>
Date: Thu Aug 3, 2006 3:38 pm
Subject: RE: 40!

iegtot012556

Offline

Happy Happy Birthday Scott ! Way to go !

Ines

----- Original Message -----

From: Scott Sands

To: npventsupport@yahoogroups.com;dmdpioneers@yahoogroups.com

Sent: 8/2/2006 4:37:11 PM

Subject: [npventsupport] 40!

Hi All,

Just want to inform you all that today is my 40th birthday. Duchenne
can eat my shorts!

Striving to survive,

Scott Sands

#1842

From: Mark Boatman <nodakwheeler@...>
Date: Thu Aug 3, 2006 1:32 pm
Subject: Re: 40!

nodakwheeler

Online Now

Scott,

Way to go man! You are a great example of how the medical establishment can be so wrong when trying to predict the length of someone's life. When I was diagnosed with Duchenne's in 1980 the docs said he may see 16. Well on Aug 16th i'll be 31 ;-)

Hope you had a great birthday! Keep on striving for the big 5-0

Mark
VSN Moderator

Scott Sands <scottsands@...> wrote:

Hi All,

Just want to inform you all that today is my 40th birthday. Duchenne
can eat my shorts!

Striving to survive,

Scott Sands

Groups are talking. We´re listening. Check out the handy changes to Yahoo! Groups.

#1841

From: JoJo <jojo4xp@...>
Date: Thu Aug 3, 2006 11:55 am
Subject: Re: 40!

jojo4xp

Offline

Happy Birthday Scott! :)

--- Scott Sands
<scottsands@...> wrote:

> Hi All,
>
> Just want to inform you all that today is my
> 40th birthday.  Duchenne
> can eat my shorts!
>
> Striving to survive,
>
> Scott Sands
>
>
>
> Yahoo! Groups Links
>
> http://groups.yahoo.com/group/npventsupport/
>
>     npventsupport-unsubscribe@yahoogroups.com
>
>
>
>
>
>

Take care,
JoJo

Web-nuts Help forum
http://web-nuts.com/forum/

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#1840

From: Scott Sands <scottsands@...>
Date: Wed Aug 2, 2006 9:35 pm
Subject: 40!

sfsands66

Offline

Hi All,

Just want to inform you all that today is my 40th birthday.  Duchenne
can eat my shorts!

Striving to survive,

Scott Sands

#1839

From: Robert Feinstein <harlynn@...>
Date: Wed Aug 2, 2006 2:19 am
Subject: Spoke with John

harlynn@...

Hello, list friends; this is Bob in hot, hot NY.  I just spoke via phone
to John in California and he is beginning to be able to speak.  He told me
that he has a long way to go, and that he feels very weak, but I was able
to understand him without any difficulty.  He is able to talk in very
short phrases and it is truly miraculous!  He has a loving supportive
family.  And to think his Mom told me the drs had recommended taking him
off life support; it is enough to make one shudder with fear!

I hope all of you listers are doing well and that you have
air-conditioning.  I took a really, really, really bad fall about two
weeks ago, but am starting to recover; I actually broke a rib, but it
could have been a lot worse.

Warmest regards,
Bob

Reply | Forward | Messages in this Topic (3)

#1838

From: Mark Boatman <nodakwheeler@...>
Date: Tue Aug 1, 2006 3:59 pm
Subject: To Paralyzed Former Racer, Bush's Stroke of Pen is Veto of Hope

nodakwheeler

Online Now