Hello NPVSN, First off, greetings from wndu.com! Recently your friend, Mark Boatman, thought you might be interested in a page we're currently featuring on...
Thanks to Bob Feinstein in New York for bringing this to my attention. Brooke Elison is running for NY State Senate in 2006! You can read more on her campaign...
I did 17 minutes under the water today, it was a blast! I can't wait for when I get up to 30 minutes or more, and I am also anxiously awaiting for when I can...
Mark Great job on the newsletter!You're to be congratulated on the good job you do as our moderator! Vents have come a long way since my old LP-4 in '81 ! I...
T, Great job on an important subject. I signed my first "living will" in 1976 at age 19. A college professor teaching a health class first educated me on them....
Matt, That is so awesome. You are acheiving your dream and I' so happy for you! 30 minutes will happen! Keep rockin on and can't wait to hear about your next...
Ines, Thanks for the kind words. I've really enjoyed starting this group and watching it grow. Yes vents have evolved alot. I love the dependability of my...
My mother in law sent these this morning and some of them are pretty cute. Have a wonderful day. Nicki ... Important news about email communications: If our...
Angelique Novak
anovak@...
Oct 12, 2005 1:07 pm
138
I'd like to welcome the newest member to the NPSVN. Tim Carey is 32, has Duchenne MD and lives in Appleton WI. We have two Appleton members now! Tim's email...
This is Tim. I am 33 years old. I just wrote this for info for an interview write up currently being done by the Wisconsin rehabilitation Association...
Great intro Tim. You are pretty busy and have accomplished alot. Can't wait til your webpage is up and running. I was going to ask what kind of vent you use....
After reading Tim's reply I got to thinking about something. I'm curious why some folks use two ventilators from two totally different vent manufacturers. I'm...
Mark, For years I ran my LTV 950 24/7 as I had an LP-10 as a backup and I wasn't fond of the way it breathed me. Finally my DMG provider decided that they...
Mark I still use a PLV-102b at my bedside. I love my LTV-950(on my W/C) for its size and portability. I do think though its the noisiest machine I've ever...
Ines, Thanks for the reply. I find it interesting how everybody does everything differently in some way. I have always used a Shiley size 6 cuffed trach, It...
Well for me I started using a ventilator because my mother found me not breathing early morning. I was in hospital then 2 months. One month icu, one month...
I have used a size 4 Shiley Fen from 1991 when first started with trach and ventilator. In around 2002 my trach started leaking so bad (tried everything). I...
I used a shiley early on. It too was fenestrated, and rigid plastic.. I developed a lot of granulation/scar tissue around my stoma and stoma was always trying...
My original tube was cuffed and fenestrated and they kept it that way for six weeks then they swapped it for the uncuffed, non fenestrated trach tube. I'm a...
Hey, dude. Have you ever tried being on the respirator with the cuff down? I do it all the time. I only have it up when I sleep at night so that when
I...
Gyle, I have had my cuff down pretty much 24/7 since I've had my trach. It took a few days of work by the hospital RT's to get me to tolerate it. Haven't had...
In 1991 when I first got trach and ventilator I couldn't breathe good enough for cuff empty. But Dr. did recommend it because of talking. But it wasn't a...
In 1991 when I first got trach and ventilator I couldn't breathe good enough for cuff empty. But Dr. did recommend it because of talking. But it wasn't a...
Gyle I'll try to explain. First, I have tried leaving the cuff down. Doesn't work for me.I have a history of aspiration pneumonia and my vocal cords are...
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