I am also very sensitive to humidity. If I don't get heated humidification then
my secretions get very thick and sticky. My parents purchased a heated plate
humidifier. I have an inverter that runs off my wheelchair battery (as does my
vent-design by my parents). This way I can always have heated humidification
while on the vent. Off the vent I am fine but on the vent the nonhumidified air
hurts.

-Christamae


> I attend school full-time, so usually I'm off the humidifier for 4 - 12 hours.
This varies depending on my classes and social stuff. It's important to say that
I bleed no matter how long I use it. Yes, I was using the Portex brand and have
also tried Gibeck brand. My RT has never had this problem before but switched me
to the Ballard Flex HME. I found it very difficult to breathe through the
Ballard brand so until I can see my pulmo, I gave up using it as well.
>
>
>
>
>
> MJ Purk
> SMA type I+, 21 years old
> "For what it's worth: it's never too late or, in my case, too early to be
whoever you want to be. There's no time limit, stop whenever you want. You can
change or stay the same, there are no rules to this thing. We can make the best
or the worst of it. I hope you make the best of it. And I hope you see things
that startle you. I hope you feel things you never felt before. I hope you meet
people with a different point of view. I hope you live a life you're proud of.
If you find that you're not, I hope you have the strength to start all over
again." - Brad Pitt in The Curious Case of Benjamin Button
>
> Ask me about B4SMA – Blankets for SMA kids, Our-SMA-Angels websites, and
Personalized Merchandise!
>
> www.our-sma-angels.com/b4sma - B4SMA, My organization
> www.our-sma-angels.com/Margaret - My website
> www.cafepress.com/b4sma20- My Shop
>
>
>
> -----Original Message-----
> From: npventsupport@yahoogroups.com
> To: npventsupport@yahoogroups.com
> Sent: Wed, Jul 1, 2009 2:18 pm
> Subject: [npventsupport] Digest Number 1353
>
>
>
>
>
>
>
> 1b.
>
> Re: HME Question
> Posted by: "Sharon Agli" fitforlifesja@... fitforlifesja
> Tue Jun 30, 2009 4:54 pm (PDT)
>
>
>
> Hi, MJ! Are you using the Portex brand and how long are you off the Humidifier
(home chamber) and on the HME? What did your RT say?
>
>
> To: npventsupport@yahoogroups.com
> From: TWEETYROLL88@...
> Date: Tue, 30 Jun 2009 17:42:26 -0400
> Subject: [npventsupport] HME Question
>
> Got a quick question for those of you with trach's or children with trach's or
trach knowledge.
> When I am up and out and about going to class, I was using a thermovent to
keep my airway moist. However, if I use my thermovent, my secretions are thick
and bloody but if I don't use the thermovent, they are just thick. Is there
something I am missing or something I could do to help keep them thin and easy
to suction/cough out. I have since quit using my thermovents. Is it just me
being me or any advice? (I kno w Kimi already answered on FB)
>
> MJ Purk
> SMA type I+, 21 years old
> "For what it's worth: it's never too late or, in my case, too early to be
whoever you want to be. There's no time limit, stop whenever you want. You can
change or stay the same, there are no rules to this thing. We can make the best
or the worst of it. I hope you make the best of it. And I hope you see things
that startle you. I hope you feel things you never felt before. I hope you meet
people with a different point of view. I hope you live a life you're proud of.
If you find that you're not, I hope you have the strength to start all over
again." - Brad Pitt in The Curious Case of Benjamin Button
>
> Ask me about B4SMA Blankets for SMA kids, Our-SMA-Angels websites, and
Personalized Mer chandise!
>
> www.our-sma- angels.com/b4sma - B4SMA, My organization
> www.our-sma- angels.com/Margaret - My website
> www.cafepress. com/b4sma - My Shop
>
> An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
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