Just wanted to welcome you guys to our group. This message is also to test and make sure things are working ok. Anybody got plans for the 4th on Monday? I'm...
Man O Man, it is getting so that there are so many new members joining our group that we can't keep up with them. I'd like to welcome both Jess and Audrey...
To our newest members Ellie and her mom! Please introduce yourself to the group and always feel free to ask questions, share experiences, vent or just add to...
Welcome Kris and Ellie!  Glad your here and I look foward to your participation in the group. As Theresa said, I live in Missoula Montana which is in the...
Hi All, Just a quick intro...we are trying to decide whether or not to trach our daughter, Ellie. She has Mitochondrial Disease (Leigh's Disease) and doesn't...
Dear Kris (and family), My name is Sharon, and I have a beautiful 3 yr. old son, Hunter, whom is afflicted with SMARD1 (if you have a moment, Google this...
Kris,  I wouldn't say the trach will limit her much other than the swimming. There are many kids who have trachs and they live normal active lives. ...
I have to disagree. Trach was a huge change for me. I had vocal chord damage and couldn't swallow for 3 months or make any noise for 6. I still can't talk...
Yes everyone has a different transition when it comes to being trached. I propably made it sound much easier than it was but I definetely had rough days (and...
Kris, I was trached a few months before my 21st b-day (I'm now 30) and it changed my life significantly. Before then I was on Bipap only at night and was ...
Everything Christamae says can be true for some people. In my experience w/a trach, I've never had any bacteria colonize in my trach and I will be trached...