I do not want the entire group seeing these photos.Because some may recognize me. Here's the link: http://rasallover.zoomshare.com/files/photos.htm Enjoy babe...
Hi Noonan, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to...
hello everyone! my son turned 1 on March 6, 2009. On March 3rd we were told that he has Noonans Syndrom, specificly RAF1. I was wondering if there is anyone...
Hi there everyone. My name is Kim and i live in Melbourne Australia, my son bailey was born with Noonans syndrome and has all the characteristics of Noonans ...
I understand that services and references to websites are not permitted but I may come under a different category I am a massage therapist who works with ultra...
I was researching new procedures for valve replacement surgery (Aaron will need a new valve for his pulmonary stenosis). I found some information about a new...
Hallo to all,we are wondering do you have problems with your ns child having aching legs at night,this has been ongoing for us for along time and getting worst...
Hi to all ,just to warm your hearts i have had my seven grandchildren staying 5 girls 2boys , and the brightest and smartesed was my grandson with NS.Iam sure...
Hi All, Just wondering how many NS parents out there have found that their kids with NS also have a Chiari I Malformation. Someone had mentioned it to me as a...
Hi I've just joined the group and wanted to also see CarePlace but every time I try to open the site I get a Norton warning about a Worm intrusion attempt. Can...
hi my name Janet I am new on this site. I have a 13 year old boy who was a 26 week preemie with multiple disabilities. He was just diagnosed with Noonan...
Hi, Pam, find enclosed pics of my son, Tom-this week! yes he is sarcastic and clever but very loving and cute too!! I am really sorry you are on a bad patch...
Hello All, I am new here, but very glad to have found this group. My son (now 27 months old) was diagnosed with Noonan Syndrome last fall because of failure...
has anyone else had to deal with your child nit sleeping thru the night. my son is almost 4 and he has only slept about 5 nights thru, the rest he is up every...
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