We did not know. We are not planning on having anymore children so we will never know for sure if either my husband or myself carry the gene for it. If we were...
Hi to all ,just to warm your hearts i have had my seven grandchildren staying 5 girls 2boys , and the brightest and smartesed was my grandson with NS.Iam sure...
Hallo to all,we are wondering do you have problems with your ns child having aching legs at night,this has been ongoing for us for along time and getting worst...
Hi-yes Tom does-we rub them for him and give him calpol. No-one has ever told us why he has it-he is on gh now but had the pains before we suspect. I am sure...
-Hi, My son Connor has always had problems with pain in his legs mainly at night. He does have hyperextensive joints and through the years he has had PT. He...
Hi Lynda, thanks my grandson lloyd is the same as Connor, and we do the same as yyou,.We have also started to massage legs in the bath, it seems to give a...
In one of the articles I read in my early digging about Noonan's, I found a list of symptoms parents consistently reported their children experiencing but that...
I understand that services and references to websites are not permitted but I may come under a different category I am a massage therapist who works with ultra...
I was researching new procedures for valve replacement surgery (Aaron will need a new valve for his pulmonary stenosis). I found some information about a new...
Helo micheal g. Email me privately if this can improve low muscle tone. Thx in advance shalene
-----Original Message-----
Date: Friday, October 10, 2008...
Hi Kim, My name is Mimi and I have noonan's. I was also born with VSD - which closed on its own and pulmonary stenosis. I had a very successful valveplasty...
hello everyone! my son turned 1 on March 6, 2009. On March 3rd we were told that he has Noonans Syndrom, specificly RAF1. I was wondering if there is anyone...
Hi Stephanie I'll email you from my other account - LaurenwithNS@... Lauren turned 1 on February 18th and also has a RAF1 mutation... ttys, ~Robyn ... ...
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