... a lot of problem with sarah as a baby she was on tube feeding as a little baby and had throwing up problems until she was 3 now she eats fine but she was...
hi my name Janet I am new on this site. I have a 13 year old boy who was a 26 week preemie with multiple disabilities. He was just diagnosed with Noonan...
Thanks for sharing your story. It's nice to hear a "success story" and in a way it gives me hope that my son, too, might outgrow the vomiting soon. :) -Pam...
-Hi my name is Lynda and my son Connor has NS which was diagnosed at 17mths. He to has had lots of things wrong and over the years he has had 14 operations for...
Hi I've just joined the group and wanted to also see CarePlace but every time I try to open the site I get a Norton warning about a Worm intrusion attempt. Can...
Hi Kim, My son Connor who is now 14yrs old has pulmonary stenosis and at birth he had an ASD and a VSD but they closed on their own. He had a catherterisation...
We're still waiting to find out if we (the parents) have NS or not. Our first boy (2.5 years) is fine, our infant (5 mo) was diagnosed at birth. We're waiting...
Hi All, Just wondering how many NS parents out there have found that their kids with NS also have a Chiari I Malformation. Someone had mentioned it to me as a...
Pam - You should definitely get in touch with Nancy Naugle. This page, at The Noonan Syndrome Support Group's web site, has info. about Chiari and includes ...
My son Connor was diagnosed at 17 months with NS and it has been a sparodic mutation (no one in either families have it, it just happened out of the blue.) I...
I completely agree with Lynda - that our children are given to us exactly as they are for a reason. As much as I wish Lauren did not have NS because of the...
We did not know. We are not planning on having anymore children so we will never know for sure if either my husband or myself carry the gene for it. If we were...
Hi to all ,just to warm your hearts i have had my seven grandchildren staying 5 girls 2boys , and the brightest and smartesed was my grandson with NS.Iam sure...
Hallo to all,we are wondering do you have problems with your ns child having aching legs at night,this has been ongoing for us for along time and getting worst...
Hi-yes Tom does-we rub them for him and give him calpol. No-one has ever told us why he has it-he is on gh now but had the pains before we suspect. I am sure...
-Hi, My son Connor has always had problems with pain in his legs mainly at night. He does have hyperextensive joints and through the years he has had PT. He...
Hi Lynda, thanks my grandson lloyd is the same as Connor, and we do the same as yyou,.We have also started to massage legs in the bath, it seems to give a...
In one of the articles I read in my early digging about Noonan's, I found a list of symptoms parents consistently reported their children experiencing but that...
I understand that services and references to websites are not permitted but I may come under a different category I am a massage therapist who works with ultra...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
