what would you like to know I live in washington tri-cities. I have NS so I'll try to anwer any Qustons you have if I don't get back right a way it's because i...
I wanted to know how to sign up for the turner support group. At the time I now have support from a more active Noonans support group.But it would not hurt to...
Just got my BS and i wasnt even required to turn up! Just called these people 770 621-2634, filled out a few forms and a bit of paperwork and was accredited ...
lily-gannaway395@...
Apr 11, 2007 7:05 pm
719
shame on you for using this site...have you read about this syndrome? Do you have any idea how this impacts lives? Yuck. Shame on you. ...
Just got my BA and i did not even have to go to the campus for 1 day! Just got a tip from a friend and gave these guys a call 770 621 2634,...
lily-gannaway395@...
Apr 12, 2007 4:52 am
722
you can now officially call me Dr. :) Took me about 2 months, but after calling these guys 770 621-2634 they helped get me setup and get fully ...
lily-gannaway395@...
Apr 12, 2007 7:06 pm
723
I am always excited to see a new message in this group - then immediately let down when it is some lame spam. This is a support group for Noonans Syndrome -...
Windows Vista Rocks, download all the latest Software http://www.tilesandmarbels.com/knnrq...
lily-gannaway395@...
Apr 13, 2007 6:40 pm
725
Yeah, I would to find out how to stop this spam person. I haven't been on for awhile because my son has been sick. The Doctor had told me that my son's heart...
Have you tried the university of Michigan they are located in Ann Arbar Sorry to hear that Ken 25 NS. PS, AS ************************************** See what's...
In a message dated 4/14/2007 12:33:29 P.M. Eastern Standard Time, dollgril0@... writes: I live in Ohio but if there is anyone may know a Doctor that you...
See I still have PS and I am 25 years old. I go to the doc quite a bit so it does not get that bad I don't live in ohio so I would not know of any in that...
Gosh...I am by no means a cardiologist...but my son Henry's heart sounds quite similiar. He too has PVS and ASD. I think that might be it...but he is...
As I reflect on the past 2 1/2 years with my son Henry and all that my family has learned and experienced since he has joined our family...well, I would like...
Hi Amanda, I would love to provide you with another couple of support groups that I am also with, that I think you would find are far more active and ...
Hello Amanda, I am so sorry to hear about your little boy. We live in Colorado and are very lucky to have The Childrens Hospital here. They have an excellent...
Also i would like to add - my son had several VSD's, Pulmonary stenosis and the muscle thickening that is common with Noonans. They were able to take away part...
I have a beautiful 8 month old daughter named Chloe who will probably be diagnosed with NS. I say "probably" because she is in the process of being diagnosed,...
Welcome and congratulations on the birth of Chloe! I understand your feeling overwhelmed and anxious. I suggest you join the main ListServ of The Noonan...
Hi I am a 1 st time mother with a daughter that is in the prosseces of being diagonsed with N.S. her father has it so im hoping that if she does have it she...
Hello and Congratulations! I have a suggestion for the colic. I had to feed my son formula (failure to thrive, poor latch for nursing, etc.) and after TONS...
Hello and welcome. I know it can get overwelmin. My son Crisaiah is 5mths old with NS. Yes the characteristics such as facial features can lead to a diagnosis...
Welcome and congratulations on your new baby daughter! I know it can be so overwhelming. I remember when i was first told that my son may have this condition,...
I have a 16 year old son. He has a very low tolerance level, seems fairly anal and rigid in his behavior. He is also socially immature for his age. Is any of...
... Hi, Our daughter Chelsea is 16 years old. She exhibits the same behavior. Socially she prefers the attention of adults over same age peers. Yes it seems to...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
