Hi, I was wondering if anyone has had problems with Cryptorchidism. Zachary just had his appointment with Urology and they said that he has an ascended...
Owen does have it and if it doesnt correct itself he will have to have surgery to bring it down as well. Kirsten mom to Alexandria 12, Ethan 2 1/2, Owen 8...
... enough to have a Geneticist in the hospital at the time. He has lowered ears, had a webbed neck(he now has grown into it) & the broad chest. He has no...
Hi Beth, My son had this condition but with both of his testicles. He had surgery when he was 12 months old. I understand about your nervousness regarding...
My son connor had the same condition at age 4 he also had a hernia. He went for surgery quite soon after and it was a success. We have never looked back.Connor...
We would like to remind you of this upcoming event. lynda meeting Date: Sunday, February 6, 2005 Time: 10:00AM GMT...
noonan_support@yahoog...
Feb 5, 2005 10:02 am
77
We would like to remind you of this upcoming event. lynda meeting Date: Sunday, February 6, 2005 Time: 10:00AM GMT...
noonan_support@yahoog...
Feb 6, 2005 9:02 am
78
Hi everyone, I have a quick question. I have been doing some reading on NS and I have found a few statements about feeding problems/ftt resolving around 18...
Hi I am using a new service that helps people stay in touch. It is only for direct friends and allows you to privately exchange contact details and view one...
Hi everyone, we have an appt with the Geneticist on Thursday to do their little work up....Im wondering if anyone has had any experience with this and what...
we just had our daughter in a couple of weeks ago to see if we can track down a noonan diagnosis. They took a tiny brush and rubbed her cheeks for 30 seconds...
MessageThanks, I wondered if they would make us wait or not I hate waiting! ASD is Atrial Septal defect, PFO is Patent Foramen Ovale and PVS is Pulmonary Valve...
Hi everyone, Zack just had a chest x-ray and they said that he has a Bifid left anterior 5th rib. The doc said that it is normal and he should not have any...
You can only see it when he has his shirt off...it looks like a lump about the size of a quarter just above his left nipple. At first I thought it might be...
oh wow! I was just curious because Owen's rib cage is kinda funky dont know how to explain it good but it doesnt look normal I guess. Thank God it wasnt a...
Bone anomolies are definately noonans. Thank goodness it isnt a tumor! ... From: kwild1@... [mailto:kwild1@...] Sent: Wednesday, March 30, 2005 7:20...
she was born with a webbed neck. They originally thought Turners but her Karyotype test came back normal. Than about 2 weeks after birth they heard a heart...
That is exactly what I thought about Zack's rib cage...it just didn't look normal. With his JMML diagnosis I have been thanking God that this was not a tumor....
Messageowen has coarctation of the aorta too, his Karyotype also came back neg. they told me they really cant test for Noonans right now and they just have to...
I'm in Seattle. I am relying on the internet for help and support for my daughter. There is a lot of Turner groups out there in which parents and patients...
HI, what is JMML? Owen hasnt had any skeletal surgeries no one has mentioned anything at this time so with fingers crossed I hope he doesnt have to but while...
Hello, JMML is a rare childhood leukemia-Juvenile Myelomonocytic Leukemia. So far it seems to be a transient version, he has never had any treatments for it....
MessageI will look into those groups thanks I was hoping that this one was more active I do understand tho that people other than myself have lives outside of...
Oh wow, Im sorry I hope he is ok....I see I thought that it was actual surgery we havent done that no one has said anything about it. the Geneticist said they...
I am a little disappointed as well with the lack of communication on this string but every little bit helps. keep chatting because the more people share the...
Hello I have been listening to what you have been saying for the past month now. And just wanted to let you know that I have noonans I am right now 23 years...
HI there, I have found numerous things on Noonan's, not many different things tho I just put Noonan Syndrome into my search engine and found things that way....
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