Hey Sorry I have to talked in awhile my name is Ken Lhamon and I am 25 and has NS I went to the Docs in early Nov and he told me that my muscles are pulling...
Ken, I am so sorry to hear this. I wish there was something I could do to change things for you. Please feel free to reach out whenever you need a shoulder to...
My sister has a 14 year old son who has Noonan's and has had problems in this area, he is quick to get aroused (what 14yro boy inst you say) and has had some...
My son is only 2 1/2 so I can't say from experience with Noonan's. I can say that he sounds like a typical curious 14 year old boy. Has she talked to the...
... say) ... which ... as ... I have a 13 yo daughter and she has shown no intrest in boys, we have followed her condition over the web and special groups for...
Thank you so much for the info. I haven't been able to find anything online that supports this as a symptom. Unfortunately, it sounds like it just another...
I just joined this group in an effort to learn more about Noonan's syndrome, which might be a fit for my daughter. I'm sure many of you here are familiar with...
my 5yo grandson has noonans,I don't know a heck of a lot about it other then what I find on the internet and thru my daughter.He seems to be a healthy boy.He...
Hello I am 25 years old and have very poor eye sight and glasses aren't helping they say my muscles are pulling apart and doctors are not sure why I was ...
Hi - Welcome to the group. Many of the characteristics of Noonans can mimic other genetic conditions. Like for instance our son was tested for 22Q Deletion as...
Yea I know I was put in the hospitl about 6 months ago and most of the doctors did not know what NS was so one of them went home and looked up info and found...
There is another syndrome out called Leopard Syndrome. I do not know alot about it - save for the fact that many of the characteristics mirror Noonans...
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Could you explain the heart thickening? My son's heart had lining separating the two sides of the heart get thick. Maybe the rest did too but we don't know....
Well I can't stand the cold or the hot my parients turn the heat on to about 65 and I am always cold so I turn it up and they turn it down. but then when its...
I have a quesion I was placed in the hospitly because of shortness of breath and the only thing that they found is that my heart walls are to thick but they...
Stephanie, First off i want to say how trully sorry i am for your loss. We went thru quite an ordeal with my sons heart and still i feel blessed that it was...
I am proud to say my son is finally taking steps unaided. Heck he is almost 32 months old and I was beginning to think he would never walk. We are working on...
... but i know that my son cries more often than my friends baby whom is three days older. By the way what is bm?> he is always passing gas and cries out every...
A bm is a bowel movement. Seems if he has one 'coming' he can't stay asleep. As far as crying - can't help you there as my son is a really happy baby and...
Hi there, sounds like our boys are in a similiar boat...Our son Henry is 29 months and is just starting to try and walk. He has an OT, PT, and a Care...
Hi Shalene, I just wrote a super long email to Maria about this...I hope you don't mind if I just pass it on to you? -Madeline Hi there, sounds like our boys...
thank you very much. if you have any other info to sharev i will be more than happy to listen. Madeline mckee <mckeefamily1@...> wrote: Hi Shalene, I...
The thing is he's not constipated. He goes on his own and barely even pushes. The problem is he typically goes in the early morning and if when he does go in...
... day he does not have a problem with bowel movements.He just cries every time he passes gas. I hope its something simple .Ill bring it up with his physician...
hello i know this is from 2004 but my baby was diagnosed a few weeks ago. I know your child is older now so therefore you might have more info. please respond....
Hi again Shalene, first of all, Congratulations on the birth of your little boy!!! I didn't realize when I emailed you earlier that he was so new in the...
Hi Maria, Connors mum here, good news that the wee one has finally found his feet. Thinking back 13 years ago Connor had the same problems and still has to...
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