Hi and welcome to the group. Yes Noonan syndrome can be tested by a blood test. My son Connor who is 13years old now has Noonans, he has been tested for...
My daughter Hailey was diagnosed with the triple x syndrome and now the doctor is sending us to a genetisist to run more test because at first he thought she...
Hi again Group, Sorry it has taken me so long to reply, especially to Amanda. Lachlan recently underwent major surgery for an RVOTO (Right Ventricular Outflow...
Well thats good yea I have to wear mine all the time I just changed Eye docs since my last one is not telling me nothing I keep asking ?s and he just avoides...
Yes, my son has Nystagmus which is jerky movement of his left eye. He has to wear glasses on occasions, not all the time. My daughter has a visual perception...
Oh that is excellent news!!! My son didnt walk until 14 1/2 mos old and my daughter didnt start to walk until she was 22 1/2 mos old they both have NS. ... ...
well I do not have a son but I have pulmary stinosis they told me when I was a kid that I would need heart surguary but they were able to hold off still don't...
well I was the same way when I was his age let me tell you something I still don't want to keep them on. well I have a problem with my mucles in the eye they...
I forgot I am 24 years old and has NS I don't have a lot of facial features but I do have a few like webed neck and pointed ears wide eyes mostly I have the...
Well done Dalton keep the good work up. My son didn't walk until he was 22 months and he had to wear gators to prevent his knees from going too far back. I was...
yes Connor has had three operations to correct squints in both eyes, he has an other one to get.He also has in the past had to wear an eye patch and he has...
Hey, I was the one pointed out that is ankle was not looking right. I seen it when he would pull himself up to a standing point. I would see that he was...
Hi, My son Lachlan, 19 months, has an astygmatism in his left eye. It has only just been picked up on and he is due for review again in about 2 months, with...
Hi Amanda, What terrific news? May I ask how you learnt that your son's ankles were lacking in strength? My son Lachlan also has Noonans, with a majority of...
Hi-Tom had an astigmatism which vanished! He is long-sighted but I have been told unless he squints to leave it as his sight seems fine-he can spot a needle in...
My son is starting to walk. The doc's are so happy because they didn't think he would do this good. I am just so proud of him. But he has to wear leg braces...
Yes my son is 19 months and have to have glasses. He will not keep them on. it is almost like lazy eye. When he looks at something only one foces the other...
I'm not too sure why this article didn't attach, but here is the site address: http://www.new-vis.com/fym/pdf/papers/feeding.16.pdf Hope you have a chance to...
Well, I have spent much time researching why my son Henry has had so many issues with Failure to Thrive, Reflux, Food/Texture aversions, Constipation, etc. I...
Hi Rose, Lynda here Connors mum, I know how you feel but if we don't do the running then no one will bother to tell us anything. Connor is 12yrs now and I...
Thanks for the replies. The fevers have been recurring since at least 8 mos old. I ran to the doctor for each episode untit he was two & decided.... motrin &...
I don't know about the dwarfism - but the shortness - very much a noonans thing! I also think noonans is very common. I think there are so many people that are...
Yes this used to happen to my son Connor and i was so worried about it. I was told that it was because his immune system wasn't mature enough and that it was...
hey just thought i'd update about dillion he is doing great but he has a fractured hip and it's been like tha sence birth but we are just now finding out about...
HI My name is Amanda and my son Dalton has fevers on and off. I go see a infectious diseases doctor when he gets really high fevers. My son at time have to get...
I have to put in two cents on this. :) My husband's family has a history of dwarfism & noonan's syndrome. His grandmother was a very short dwarf and treated...
We've been to different doctors & endocrinologists now -- Noonan's seems the closest fit for what our 3 year old son has. My concern is that he suffers from...
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