I have some really good news about Logan! First we had an occupational therapy evaluation done a few weeks ago and I am happy to report that the therapist...
i am new here my name is jessica and my son is 15 months old and is in the process of being diagnosed with noonans but i am concerned about his developemnet...
Hi Jessica, Welcome to the group, I am sure you will be able to get the help and support from this group.My name is Lynda and I live in Scotland. I am a single...
Hi Jessica! My name is Amanda my son is 18months and has nonnans. He get PT, OT, and speech. He is still a few month behind but he is getting on track with...
Hi Jessica, Welcome to the group! My son Aaron is going on 22 months. He was just recently diagnosed with Noonans. He has a PS and had a VSD (4 surgeries and...
i am needing a little more info about noonans because the doctors believe my son has it and when i looked at the pictures of all of the kids on here he looks...
Hi, Jessica, we are in the UK and they took blood and it took around 3 months for the result-but that is if they have the ptpn11 mutation..some noonans kids...
Hello and welcome to the forum! My name is Madeline and our son is Henry (age 2). He was first tested for Noonan's when he was just 2mo. old. Here's the...
this is jessica again my son dillion holds his breathe alot and crys his self to sleep at night and he is an asmetic too could this be because of noonans and...
dear Jessica...you will all be in my prayers. Do you happen to live anywhere near a Chinese medicine doctor? When we were at our most hopeless and helpless,...
Hello everyone - quick question - has anyones children experienced walking issues? Aaron's foot turns in and sometimes he seems to have problems walking or...
Hello, our son Henry is just now 2 and still hasn't really stood on his own. His feet turn out considerably. Not sure why, Noonan's?, but we are working with...
my son dillion is also having walking problems but he has not been dianosed with noonans yet but we find out for sure in october for sure and he starts...
i just found out that my son really does have noonans and the doctors think we are doing a great job with him he goes back to the ent tomorrow do to the fact...
Does anyone know how to settle a boy to sleep who is on dexedrine? I have had such a hard time and was wondering if anyone had a solution? I put him to bed...
Hi Linda, My son Connor is 12yrs now and has never slept in all those years. He too was put to bed after his bath and bedtime story. He would sleep for 2 to 3...
http://www.noonansyndrome.org/ You can join the listserve group (this is the official Noonan Support Group webpage) and/or email Wanda to get the parents...
Hi Chris, Kylie has problems walking. Her feet turn in and she has something called forefoot adductus. Instead of wearing braces they have her wearing a good...
Hi Jessica! My name is Katie and I have Noonans as well as my son, who is 3 1/2 yrs old and my daughter who is 2 1/2 yrs old. As you can tell for us it's a...
They can either do a blood test or a DNA swab. The swab takes 4-8 weeks and the blood can take anywhere from 2-3 weeks. We had the swab done on Kylie. The...
I posted about Andrew (7months) having constipation problems. Well we went back to his ped who sent him to the hospital to have another enema. Now he's been...
For what it's worth, here is my thoughts on the constipation. From what I've been noticing, it seems our little ones with Noonan's were born with digestive...
Tracy, We used to give Lactulose to Zack and he had a hard time taking it too. I used to mix the dose with the same amount of white grape juice or apple juice...
Hi Tracy, My son Connor was on lactulose for years. I used to give it from a syringe, as he got older he did fight with me and i then had to bribe him by...
We've been to different doctors & endocrinologists now -- Noonan's seems the closest fit for what our 3 year old son has. My concern is that he suffers from...
I have to put in two cents on this. :) My husband's family has a history of dwarfism & noonan's syndrome. His grandmother was a very short dwarf and treated...
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