HI everyone! How are you all? We are doing fine. We went on a camping trip in New Hampshire at the beginning of July and had a blast! Not long after we came...
Hi Maria, Great news! It does make you feel good when you hear good weight and height isn't it. My little Zack weighed 14 lbs 10 ozs on his 2nd birthday and...
Beth, Mont county doesnt start speech until 3? Hmmmm thats is weird because Kylie is getting speech therapy through mont county and she is not even 3 yet. She...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are suffering...
HI, I'm Tracy proud mommy of 2 little ones with Noonan's. 4 year old Teaghan, and 6 month old Andrew. My question is about bowel problems. Andrew has had many...
My son Connor is 12yrs now and has always had problems with constipation. Some times it was so bad that he would scream and his face would be purple with the...
Hi Tracy, We have had the same problems with Zack, who is now 3 years old. The types of foods we gave him did not matter, he always had constipation problems....
This is slightly OT but hope the mods will allow it. I am wanting to make what I have named Preemie Wish Bottles for parents with preemies still in the NICU....
I have some really good news about Logan! First we had an occupational therapy evaluation done a few weeks ago and I am happy to report that the therapist...
i am new here my name is jessica and my son is 15 months old and is in the process of being diagnosed with noonans but i am concerned about his developemnet...
Hi Jessica, Welcome to the group, I am sure you will be able to get the help and support from this group.My name is Lynda and I live in Scotland. I am a single...
Hi Jessica! My name is Amanda my son is 18months and has nonnans. He get PT, OT, and speech. He is still a few month behind but he is getting on track with...
Hi Jessica, Welcome to the group! My son Aaron is going on 22 months. He was just recently diagnosed with Noonans. He has a PS and had a VSD (4 surgeries and...
i am needing a little more info about noonans because the doctors believe my son has it and when i looked at the pictures of all of the kids on here he looks...
Hi, Jessica, we are in the UK and they took blood and it took around 3 months for the result-but that is if they have the ptpn11 mutation..some noonans kids...
Hello and welcome to the forum! My name is Madeline and our son is Henry (age 2). He was first tested for Noonan's when he was just 2mo. old. Here's the...
this is jessica again my son dillion holds his breathe alot and crys his self to sleep at night and he is an asmetic too could this be because of noonans and...
dear Jessica...you will all be in my prayers. Do you happen to live anywhere near a Chinese medicine doctor? When we were at our most hopeless and helpless,...
Hello everyone - quick question - has anyones children experienced walking issues? Aaron's foot turns in and sometimes he seems to have problems walking or...
Hello, our son Henry is just now 2 and still hasn't really stood on his own. His feet turn out considerably. Not sure why, Noonan's?, but we are working with...
my son dillion is also having walking problems but he has not been dianosed with noonans yet but we find out for sure in october for sure and he starts...
i just found out that my son really does have noonans and the doctors think we are doing a great job with him he goes back to the ent tomorrow do to the fact...
Does anyone know how to settle a boy to sleep who is on dexedrine? I have had such a hard time and was wondering if anyone had a solution? I put him to bed...
Hi Linda, My son Connor is 12yrs now and has never slept in all those years. He too was put to bed after his bath and bedtime story. He would sleep for 2 to 3...
