Hi, My son Dan has Noonans Syndrome. He is 12 years old, and used to being so much shorter than all of his friends. I would love to exchange experiences etc...
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... opionion. ... too ... her ... was ... may ... this ... or ... know ... me ... replying! ... Dear Linda, Another Linda here. My son Dan has to make up his...
... opionion. ... too ... her ... was ... may ... this ... or ... know ... me ... replying! ... Dear Kris, Interesting to hear of your exp of GH. My son is 12...
Hi Linda my name is Lynda also and i have a 12 year year son Connor. On Wednesday he is going to the paediatric doctor and he wants to discuss Growth Hormone...
Hi everyone, just been to Connors parents night and i am really proud of my wee guy. Every teacher i talked to has told me that he is very intelligent despite...
I am so thrilled for you!!! Great job Connor! The strangest thing for me about having a child with Noonan's is the simple things that my daughters did thrill...
Way to Go Conner. I am so happy for you. My daughter is doing very good in school this year as well. But we did find out that she has subglottic stenosis and...
Hi Amanda here mother of Dalton. The doctors want to do sugery on Dalton for his undecented testes. They Say the want to do it soon because if they don't then...
first of all, please don't ever doubt your good intentions for your little boy! Sounds like you just want him to have a break from so much intervention...it...
Hi. Our son had this operation when he was 15 months old. We were surprised but it took apx 1 week for recuperation time. Don't recall him crying out in...
Oh, one more thing. The reason we had the operation so quickly for Joseph was because he had hernias and the doctor was worried they would burst. The hernia...
Hi Amanda, Lynda here mum to Connor now age 12. Connor had the same operation at age 4yrs but he also had a hernia operation done at the same time. He bounced...
Hi Amanda - first of all don't ever feel like you are being a bad mommy. Surgeries are stressful and alot to go through for your family. Sometimes we all need...
Hi everyone- I have been asked for a general update on Logan by several different people so here it is. He will be two in just under two weeks ... wow can't...
I am hoping it is only a food jag typical of toddlers but in the past two weeks or so he is shying away from fruits and veggies. Don't get me wrong he eats...
This weekend is going to be very busy for me.... Saturday we are having a very small birthday party for Logan whose b-day is on Monday!!! Sunday I will have a...
Hi Maria, I just wanted to say, as someone who used to have a booth at a Saturday Market craft fair...that you will have LOTS of fun! People are usually so...
Hi, I am wondering if anyone could share with me their info on slow weight gain. Henry is now 21 months and still only weighs 15lb 7oz. He has recently gone...
Hi my son Connor was very slow to gain weight.He is now 12 years old and is still struggling to put weight on.Connor has been to see the dietitian on and off...
Thank you so much for your feedback. I feel a bit overwhelmed when the specialists at one of the best hospitals in the Northwest says, "Well, I don't know...
Hi Madeline! My son Dalton was having a hard time gaining weight when I brought him home. He was on the NG tube. He was put on a 30 cal diet. But when ever I...
Did you know that premature birth is the leading cause of newborn death in the first month of life? It affects half a million babies a year in the United...
Hi there everyone. My name is Kim and i live in Melbourne Australia, my son bailey was born with Noonans syndrome and has all the characteristics of Noonans ...
Hi Kim, My son Jack (17 months) also has a heart murmur. His is very minor and does not require surgery. In fact, many people have heart murmurs that do not...
Hi Kim, My daughter, Kylie, has pulmonary valve stenosis and atrial septal defect. For her PS it was not mild it was severe(she had 75% blockage) and she had...
Hi there, thankyou for your very quick reply, as i have stated, i live in Melbourne Australia and althought the geneticists here are extremely helpful i...
Hi there, thankyou for your very quick reply, as i have stated, i live in Melbourne Australia and althought the geneticists here are extremely helpful i...
Hi there, i am a new member, Bailey my 3 and half year old has noonans, i live in melbourne aus. He is very agressive and hyperactive, he has speech...
Hi Stacey, Your email was beautiful, it has given me positive hope. thankyou, i will continue waiting and think of the positives that you have given me. ...
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