... Debra i have a son age 11yrs,he has been through a lot in the past years.Connor has a dent in his chest and is talking about surgery to make it better.He...
We would like to remind you of this upcoming event. connor dr stains Date: Wednesday, January 5, 2005 Time: 12:00AM GMT...
noonan_support@yahoog...
Jan 4, 2005 12:02 am
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We would like to remind you of this upcoming event. connor dr stains Date: Wednesday, January 5, 2005 Time: 12:00AM GMT...
noonan_support@yahoog...
Jan 4, 2005 11:02 pm
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We would like to remind you of this upcoming event. lee dr blair Date: Monday, January 10, 2005 Time: 9:00AM GMT...
noonan_support@yahoog...
Jan 9, 2005 9:02 am
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We would like to remind you of this upcoming event. lee dr blair Date: Monday, January 10, 2005 Time: 9:00AM GMT...
noonan_support@yahoog...
Jan 10, 2005 8:02 am
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Hi! I'm sorry but I have no idea what theese reminders are about...? If anyone knows, please fill me in! Ann (mother of Fanny -99 and Frida -02 with Noonan...
Can anyone help me? My son Connor is going to get his ears done, and i am trying to find out what is envolved.I would love to talk to anyone who is affected by...
Im sorry I cant help you my son is only 8 mos. 5 1/2 mos. adj. and we just recently found out for sure he has Noonans but I would love to chat tho! Kirsten mom...
kwild1@... wrote:Im sorry I cant help you my son is only 8 mos. 5 1/2 mos. adj. and we just recently found out for sure he has Noonans but I would love to...
Hi, I have a 3yr old boy with Noonan Syndrome. I would like to contact a parent from Australia with a child with Noonans. We live in Western Australia. Thanks,...
Hi all, My 6 yr old daughter Jill just got diagnosed with Noonan at Boston Childrens Hospital. I had asked the doctor about the possibility of getting social...
Im still fighting to get Owen SSI, he has other problems too but so far they are still working on it! Good luck Kirsten mom to Alexandria 12, Ethan 2 1/2, Owen...
Hi, I am not sure about SSI, you should try to apply I know it can be a long difficult task, but if you feel your child deserves it and you have the medical...
I NEED SOME ADVICE. MY SON IS 6 MONTHS OLD AND HAS THE NOONAN ANOMILIES SUCH AS THE WEBBED NECK, BROAD CHEST, DOWN SLOPED EARS. I HAVE HAD HIM TO SEVERAL...
Hi My 3yr old has NS. He was diagnosed at birth because we were lucky enough to have a Geneticist in the hospital at the time. He has lowered ears, had a...
Well I am glad that your son has grown into it. I will like to let you all know that in some cases they will grow healthy I mean I have NS and I still have...
Hi, I was wondering if anyone has had problems with Cryptorchidism. Zachary just had his appointment with Urology and they said that he has an ascended...
Owen does have it and if it doesnt correct itself he will have to have surgery to bring it down as well. Kirsten mom to Alexandria 12, Ethan 2 1/2, Owen 8...
... enough to have a Geneticist in the hospital at the time. He has lowered ears, had a webbed neck(he now has grown into it) & the broad chest. He has no...
Hi Beth, My son had this condition but with both of his testicles. He had surgery when he was 12 months old. I understand about your nervousness regarding...
My son connor had the same condition at age 4 he also had a hernia. He went for surgery quite soon after and it was a success. We have never looked back.Connor...
We would like to remind you of this upcoming event. lynda meeting Date: Sunday, February 6, 2005 Time: 10:00AM GMT...
noonan_support@yahoog...
Feb 5, 2005 10:02 am
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We would like to remind you of this upcoming event. lynda meeting Date: Sunday, February 6, 2005 Time: 10:00AM GMT...
noonan_support@yahoog...
Feb 6, 2005 9:02 am
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Hi everyone, I have a quick question. I have been doing some reading on NS and I have found a few statements about feeding problems/ftt resolving around 18...
Hi I am using a new service that helps people stay in touch. It is only for direct friends and allows you to privately exchange contact details and view one...
Hi everyone, we have an appt with the Geneticist on Thursday to do their little work up....Im wondering if anyone has had any experience with this and what...
we just had our daughter in a couple of weeks ago to see if we can track down a noonan diagnosis. They took a tiny brush and rubbed her cheeks for 30 seconds...
MessageThanks, I wondered if they would make us wait or not I hate waiting! ASD is Atrial Septal defect, PFO is Patent Foramen Ovale and PVS is Pulmonary Valve...
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