Hello, I'm new here. I have two children with NS. A 3 year old daughter, and 7wks old son. My daughter had open heart surgery to repair an ASD and a few other...
Hi Tracy, My name is Amanda. I have a one year old son who has noonan's. He has heart issues, which is PS, ASD, and LVH. He also has issues with swallowing,...
Hello Tracy, My name is Wendy. My daughter Morgan is 7 and she has NS. She had surgery to correct her pulmonic stenosis when she was 18 months. She also has...
Welcome, and congratulations on your recent delivery! My name is Madeline and I have a 6yr. old daughter (no NS) and an 18mo. old boy with undiagnosed but...
Hello, Im Katie, mom to 2 children. Jacob 3, probable Noonans and Kylie 2, who has Noonans. Kylie and Jacob show similiarities(sp?) so when we go back to...
Hi Tracy, Welcome! - my name is Christina. I have a 15mo old son named Aaron. Last visit with cardiologist was told that he may have Noonans. We are going for...
Hi Madeline..my daughter had her sugery last May she was 2 1/2. They had tried to repair the ASD through catheritzation the previous Jan, but it didn't work....
Hello, My name is Wendy and my daughter Morgan has NS. Morgan had her annual ARD at school yesterday and the school has some concerns with her speech. The...
Hello, My name is Wendy and my daughter Morgan has NS. I met with the school yesterday about Morgan and they have some speech concerns. They are concerned...
My daughter hasnt been through this but she is getting speech therapy once a week for an hour. We had a meeting the other week and now she is getting every...
We are leaving in about 10 minutes to take Logan for his sedated echocardiogram. He is hunrgy so he is very cranky. Poor little man ... I hate not letting...
Hi everyone. First of all I would like to thank everyone who has called, emailed or otherwise contacted me and offered support. It means a lot to me. Well...
HiALL. I have started a site http://www.outofstress.com which describes all aspects of stress and relief.This is the place where everyone relaxes and find...
Hi, My son Dan has Noonans Syndrome. He is 12 years old, and used to being so much shorter than all of his friends. I would love to exchange experiences etc...
... old ... It ... I ... 20 ... and ... scan. ... had ... next ... as ... the ... wanted ... a ... not ... intensive ... review ... Weidemann). ... they ... we...
... opionion. ... too ... her ... was ... may ... this ... or ... know ... me ... replying! ... Dear Linda, Another Linda here. My son Dan has to make up his...
... opionion. ... too ... her ... was ... may ... this ... or ... know ... me ... replying! ... Dear Kris, Interesting to hear of your exp of GH. My son is 12...
Hi Linda my name is Lynda also and i have a 12 year year son Connor. On Wednesday he is going to the paediatric doctor and he wants to discuss Growth Hormone...
Hi everyone, just been to Connors parents night and i am really proud of my wee guy. Every teacher i talked to has told me that he is very intelligent despite...
I am so thrilled for you!!! Great job Connor! The strangest thing for me about having a child with Noonan's is the simple things that my daughters did thrill...
Way to Go Conner. I am so happy for you. My daughter is doing very good in school this year as well. But we did find out that she has subglottic stenosis and...
Hi Amanda here mother of Dalton. The doctors want to do sugery on Dalton for his undecented testes. They Say the want to do it soon because if they don't then...
first of all, please don't ever doubt your good intentions for your little boy! Sounds like you just want him to have a break from so much intervention...it...
Hi. Our son had this operation when he was 15 months old. We were surprised but it took apx 1 week for recuperation time. Don't recall him crying out in...
Oh, one more thing. The reason we had the operation so quickly for Joseph was because he had hernias and the doctor was worried they would burst. The hernia...
Hi Amanda, Lynda here mum to Connor now age 12. Connor had the same operation at age 4yrs but he also had a hernia operation done at the same time. He bounced...
Hi Amanda - first of all don't ever feel like you are being a bad mommy. Surgeries are stressful and alot to go through for your family. Sometimes we all need...
Hi everyone- I have been asked for a general update on Logan by several different people so here it is. He will be two in just under two weeks ... wow can't...
I am hoping it is only a food jag typical of toddlers but in the past two weeks or so he is shying away from fruits and veggies. Don't get me wrong he eats...
This weekend is going to be very busy for me.... Saturday we are having a very small birthday party for Logan whose b-day is on Monday!!! Sunday I will have a...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
