Hi Madeline! My son is 15mo and is 18lb 14oz. He is not even on the chart but his cadiologist (thank god he is the most wonderful doctor on earth) was very...
Thanks for the response...sounds like our cardiologist is thinking that we might want to speed up Henry's planned surgery. He gets so tired doing things like...
Hi, My name is kris and my daughter Nicia is 7. We were on growth hormone for two years...we took her off of it. Here is my opionion. The doctors said that the...
Hello everyone, My name is Jenni and I am new to the group. I have an 11 month old son (Lachlan) who last week has been diagnosed with NS. I would love to...
Hello, and welcome to the group. My name is Madeline and I am mom to Henry, 18mo. NS and Bella, 6yrs no syndrome. It sounds like you have done a lot of work...
Well I am sorry to tell you all goodbye but I am going to have to leave the group I am going to be moving to another town in Michigan and will not be able to...
Hi Jenni! Welcome. My name is Christina and my son's name is Aaron. He just turned 15mo. We have not had the genetic tests done (we are scheduled for early...
Dalton turned one on the 3rd of march. On the 24th of march he has to go and have surgery on his testes. They have not came down yet. So the doctor says we...
Good luck to you Ken. I hope that everthng works out for the best for you. savbyfaith22@... wrote: Well I am sorry to tell you all goodbye but I am going...
Best wishes for a successful surgery and speedy recovery. My 18mo. still isn't crawling...I guess these things will come when it's the right time for them...I...
Do not worry, My Morgan had to have the same operation, The hardest part for me was leaving him when he was going to sleep. He woke up fine, and is now 7 (he...
Hi Amanda, My son Bailey 23 mths will be have an operation for undescended testes tomorrow. They are doing both sides. The consultant never mentioned about...
hi people, I have started a site http://www.outofstress.com which deals with all aspects of stress.Our site is a fast growing.Our site objective is to help...
I just wanted to say thank you to all your nice Good byes I am getting ready to sign off now but if you still need some help my E-mail will still be active I...
Hi Amanda, Aaron had surgery for undesended testes too. He was groggy for a few days and we had to be careful about how we held him (can dislodge the testes)...
My son Dalton did not have to go in for surgery this past friday. The day be for the surgery day. The Hospital had called to get Daltons history and to see if...
Hello, I'm new here. I have two children with NS. A 3 year old daughter, and 7wks old son. My daughter had open heart surgery to repair an ASD and a few other...
Hi Tracy, My name is Amanda. I have a one year old son who has noonan's. He has heart issues, which is PS, ASD, and LVH. He also has issues with swallowing,...
Hello Tracy, My name is Wendy. My daughter Morgan is 7 and she has NS. She had surgery to correct her pulmonic stenosis when she was 18 months. She also has...
Welcome, and congratulations on your recent delivery! My name is Madeline and I have a 6yr. old daughter (no NS) and an 18mo. old boy with undiagnosed but...
Hello, Im Katie, mom to 2 children. Jacob 3, probable Noonans and Kylie 2, who has Noonans. Kylie and Jacob show similiarities(sp?) so when we go back to...
Hi Tracy, Welcome! - my name is Christina. I have a 15mo old son named Aaron. Last visit with cardiologist was told that he may have Noonans. We are going for...
Hi Madeline..my daughter had her sugery last May she was 2 1/2. They had tried to repair the ASD through catheritzation the previous Jan, but it didn't work....
Hello, My name is Wendy and my daughter Morgan has NS. Morgan had her annual ARD at school yesterday and the school has some concerns with her speech. The...
Hello, My name is Wendy and my daughter Morgan has NS. I met with the school yesterday about Morgan and they have some speech concerns. They are concerned...
My daughter hasnt been through this but she is getting speech therapy once a week for an hour. We had a meeting the other week and now she is getting every...
We are leaving in about 10 minutes to take Logan for his sedated echocardiogram. He is hunrgy so he is very cranky. Poor little man ... I hate not letting...
Hi everyone. First of all I would like to thank everyone who has called, emailed or otherwise contacted me and offered support. It means a lot to me. Well...
HiALL. I have started a site http://www.outofstress.com which describes all aspects of stress and relief.This is the place where everyone relaxes and find...
Hi, My son Dan has Noonans Syndrome. He is 12 years old, and used to being so much shorter than all of his friends. I would love to exchange experiences etc...
