I am sorry - please no one get angry at me for this - I am having a moment of self pity and needed to vent. I have three children. Diana who is almost 15....
Maria, My name is Linda Veiszer and I have a 6 year old son with Noonans. Like your son, Morgan (my son) has major development delays. He also is very small in...
In a message dated 1/4/2006 11:16:04 AM Eastern Standard Time, artononyx@... writes: It amazes me that he can pick up tiny little things but can't figure...
Thank you so much for your reply. It means alot to me that you took the time to write all this out to me. We encourage Logan to do whatever he can (bear in...
Hi Maria, I totally understand the need to vent! I have two boys Ethan will be 5 next month and Zack is 28 months. Zack was 5 weeks early and he has...
Hi Maria, Lynda here I know how you feel, I used to feel like that with Connor and i always felt that no matter what I did Connor didn't grow fast enough or...
Hi, my name is Madeline and our baby Henry is still 'undiagnosed' but I believe he has Noonan's. He is 16 mo. We also have a 5 1/2 year old girl...super...
Yeah I know, I never really thought this stuff would work either, but honestly I stand totally corrected. This place http://www.comeandseeonline.info/xzow is...
kendra.mackey5722@...
Jan 8, 2006 1:42 pm
446
shame on you...for sending this around. Do you even know what Noonan's is? "kendra.mackey5722@..." <kendra.mackey5722@...> wrote: Yeah I...
About a week ago I was feeling horrid about things that Logan wasn't doing. Well which one of you found his switch and flipped it??? He is eating loads...
... wasn't doing. Well which one of you found his switch and flipped it??? ... that, boom. Using a fork or spoon. He did before but ssooo much better now!!!...
Hello to everyone and Happy New Year. I just wanted to leave a note to say how I admire all of you on this site who either have Noonan’s or are caring for a...
How is everyone? I just found out that my son,Dalton, his heart is getting worse. All the doctor told me is just enjoy the time I have with him. He said there...
So sorry to hear your bad news about Dalton, I was told that too when my son Connor was a baby.He is now 12 yrs and his heart is doing OK.What heart condition...
Hi Maria i bet you 're so chuffed at the progress that Logan is making. Way to go.It great to hear of the little ones achieving. Talk to you later. lynda ...
My son's heart problems are Pulmonary Valve Stenosis, Atrial Septal Defect, and Left Ventricular Hypertrophy. Dalton is now 10 months old. Dalton did prove the...
Hello Amanda, My daughter has Pulmonic Stenosis. She had corrective surgery on her valve when she was 18 months old and she just turned 7 in November. We...
If you are on more than one of the Noonan Syndrome Listservs, we apologize for the cross-posting! Dear Neighbors, We are two families who live near Boston...
Does anyones children have problems with dislocated joints?Connor was sent home from school with a pain in his shoulder.He had told the teacher that he had...
Hi Lynda, How is Connor's muscle tone? Would you mind if I asked my sister (she is a licensed acupuncturist...getting her doctorates degree) about the loose...
Madeline that would be great i dont mind at all.His muscle tone is very poor.There is no muscle in the thighs or at the knees.Right now i would take and try...
Ive had a down day... and am up now at 420am searching sites to find someone I can talk to that understands what I am about to say.... I sit here with tears in...
HI Tammy welcome to the group,It's ok to feel like you do as i think that we have all been there at one point or an other.We do understand. My son Connor is...
Hello I'm new too...My name is sarah and I have two children, both with noonan's. I have it too. I found out when i was pregnant with my daughter she...
Hello all. I am new here. My son is 14 months and has had 5 surgeries this year. 4 for his heart to correct a severe pulmonary stenosis and one to repair a...
Hi - I am new here but thought i would give my 2 cents. I am not sure what your son has but my son has a fairly severe pulmonary stenosis, also ASD and some...
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