Sorry I have to gush a bit... Logan will be 18 months / 15 months adjusted on the 5th. He is getting weekly therapy and he is beginning to push himself into a...
Congratulations! You must be so proud...sounds like you really do a lot of work with him and it's great to hear he's moving along so well...time to start...
Yes its very hard to talk to my friends about NS. Everytime I do they look at me like I am strange I normally just stay home and try to hid out but it ...
Do you mind if I ask what problems you have had. My infant son was DX'd as Noonan's; and wonder what I should expect (or could). ... Yahoo! Shopping Find...
well its real hard to tell each person has diffent problems I could send you some info if you would like see I have Heart problems, Vision problems and ...
You can email me privately so you don't need to share anything you don't want to with everyone. I haev read up on Noonan's but it seems like other than the...
well I have a lot wrong with me. I do hold a full time job as a janitor and sometimes that is even hard for me. most people with NS will have slow groth...
I don't know if this is private or not...I honestly don't really understand the whole Noonan Group mailing...but I'm not worried about sharing anything. My...
I don't mind sharing.... My son is 18 months tomorrow. He was 11 weeks early. He was DX's in July at only 13 months actual. I feel he was DX'd too young....
Just been reading my email and they were very interesting. My son Connor has been through an awful lot over the past 12 years so i do understand what you are...
I have some health problems like I have heart promblems, I had a hole in my heart when I was born it was fix. I'm 4'9" and a half. I have some other things...
I think about having kids, But I couldn't do that to them and the man that would be the father of them. It was hard for me to explan that to my ex husband. ...
I can understand having a hard time talking about issues you have or have had ... especially with people who have no clue what Noonan's is. I would say that...
Its not that I don't want to share I just kept it all inside for so many years that's its still hard to talk about it. I do have some pictures of me on the...
Growning up for me was hard because I didn't fully understand what wrong with me. I wachted as my sister with thew life not having the promblems that have and...
Christina Clayton <clytn_chrstn@...> wrote: Growning up for me was hard because I didn't fully understand what wrong with me. I wachted as my sister...
I joined this group and am getting very frustrated. I wanted support. Unfortunately, all I keep getting is "it is hard to talk about". I don't mean to sound...
Well the main Problems that I have is I have Vision problems its the Muscle in the back of my eye gave out and has been like that since birth but they did not...
You may want to join the ListServ of The Noonan Syndrome Support Group. It is much more active than this group, and there are plenty of people with Noonan...
Thank you sooo much. Yes this does help me. My son has pulmonary stenosis (which we plan on having repaired asap). He has mild lazy eye which they are just...
For those with older children who didn't have a DX of Noonan's and then had one with Noonan's.... my middle child and my baby share ssooo many traits. The...
Thank you for sharing the info I know that it is hard for you. I had open heart surgery when I was 71/2 months old, I had a feeding tub for 2 months, I'm a...
Maria, I think you would be better receiving your support through e-mails rather than just the site. I totally understand how people feel about not being ready...
Just thought i would post an other message.Christmas is nearly here and i want to wish you all A Very Merry Christmas & A Happy New Year. We are just plodding...
I am sorry I came across as harsh; that was never my intent. You are right, I just am concerned and want answers. More than once I have told members that they...
i am happy you an your sons were able to get information an also Connor learing there are people who work with noonans for as you know an i know we dont know...
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