Hey everyone, A former member of one of my preemie groups sent me a photo of her son taken yesterday. It mad me really kinda sad. He is almost the exact age...
If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming illness? It just seem like alot for any one...
Hey, How you? The only time Dalton seen a genetist was at birth and that was to tell us he had NS. He also did a family history chat to see if me or my husband...
I know what you mean because I feel the same way. Dalton is behind on every thing to. He is going to be 8 month and he can't even hold his head up for very...
Just the other day, a girlfriend of mine who had just gave birth to her second healthy child said, 'She's perfect!'...obviously it was not intended as a...
Hello I am 23 almost 24 years old and has NS if you want to talk I will talk I don't know a lot about it? my name is Ken what's your name and age if you ...
Hi Amanda, My name is Linda. I have a 6 year old son with noonans. Like you when he was born I wondered what did I do wrong? Then someone told me something...
Hey Amanda, Morgan is going to be 7 on the 25th of this month. She was a late blumer. She did not sit until she was 9 month, crawl at 12 months, and walked...
Does anyone with Noonans have very floppy and painfull joints?My son Connor has joints that can pop out and some times will be able to put them back in.We have...
Hi I'm 24 and my name is Christina I also want to find more about NS and I'm also here to talk too. It's nice to know that there is someone who know what its...
Hi I'm 25 and my name is Katie. I'm here to talk to others and to find more about NS. We are going for genetic testing sometime soon because on friday we had a...
has your child had any intervention done for his PS? We got denied SSI for our daughter. Maybe once she gets the genetic testing done and they tell us she has...
Yes I have NS. My family found out when I was 18 months old you? savbyfaith22@... wrote:Christina do you have NS? ... YAHOO! GROUPS LINKS Visit your group...
Hi family and friends, I do hope this email finds you all healthy and happy!! I don't get much time on the computer without Logan nursing (and it is hard to...
My baby gets SSI but I've been told it takes ALOT of work...and I spent tons of time on the phone and actively asking the doc's to help. I would call back SSI...
Our son Henry will need to have a procedure done on his heart (for his ASD) in 2 or 3 years, depending on his size...he is pretty small and they have to wait...
PLEASE read this thru it is very important!!! Last night I had to take my daughters Diana and Crystal ages 14 and 12 (as well as one of Diana's friends) to a...
Thank you for the reminder...you are right...it is of utmost importance to always remember how valuable our loved ones are. I am sorry for any pain you are...
nail artist Maria <artononyx@...> wrote: PLEASE read this thru it is very important!!! Last night I had to take my daughters Diana and Crystal ages 14...
Is it hard for you to talk to your friends about ns? I talk to some and others I don't. It's hard to open up to some with out them juging you for some thing...
Sorry I have to gush a bit... Logan will be 18 months / 15 months adjusted on the 5th. He is getting weekly therapy and he is beginning to push himself into a...
Congratulations! You must be so proud...sounds like you really do a lot of work with him and it's great to hear he's moving along so well...time to start...
Yes its very hard to talk to my friends about NS. Everytime I do they look at me like I am strange I normally just stay home and try to hid out but it ...
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