Hello! My niece has Noonan syndrome, it is very mild. She is 10yrs old. She recently went for a check up and the Nurse Practioner noticed that she seemed to be...
Was your niece diagnosed based on a PTPN11 mutation, or was this a clinical diagnosis? If it was clinical, maybe it's actually not Noonan? In a message dated...
Well Logan is recovering from his cold and his appetite is BACK!!!! Yippeee! He's eating more 'grown-up' foods. He's also eating some of his purees (not as...
I have a 6 year old who has Noonan's. She was developmentally behind when she was 1 year old but now is she on track for her age. We are still not on track...
Haven't been on the net for a while,but here is an update on my son Connor who has noonans.He will be 12 in a couple of weeks and he has just started high...
Lynda here again,I have just gone through some of the worries that parents have with their little ones and it does remind me of my son Connor when he was a...
Hi, my name is Madeline and we are still waiting for the diagnosis...but word has it (as it seems to go for us, we never hear things directly...only from other...
Hi Maria, Sorry about the delay in replying. I've not long been back from holiday. My son is like yours and very independant. We have a bag full of all sorts...
Hi, Just a quickie. Bailey always manages to get the suction plates and bowls off his high chair try. He used to have some toys when he was 6 mths old that...
My name is Kerrie i live in Canberra and my 15 year old son Ryan has NS.I am new to the internet and can't believe how much there is to read on NS.I would love...
My name is Amanda. I just joined this group hoping to make friends and get support. My son was born with NS. He was born March 3rd 2005. I don't understand...
Hello Amanda, You are not alone. Just having people to talk to helps. My 6 year old daughter was diagnosed when she was 11 months. The internet is full of...
Hi Amanda welcome to the group my name is Ken and I am currently 23 will be 24 in two mouths and I have had NS since I was born I still have a lot of problems...
... will be ... lot of ... job down I ... If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming...
Yeah, Having someone to talk to helps. your right on that. Was it hard on you when you first found out? I found out that my son had it at birth. I was thinking...
Yes, it was hard at first. Because like you, my husband and I wanted to know where we went wrong. Before we heard NS, we were told that Morgan may have...
Hey everyone, A former member of one of my preemie groups sent me a photo of her son taken yesterday. It mad me really kinda sad. He is almost the exact age...
If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming illness? It just seem like alot for any one...
Hey, How you? The only time Dalton seen a genetist was at birth and that was to tell us he had NS. He also did a family history chat to see if me or my husband...
I know what you mean because I feel the same way. Dalton is behind on every thing to. He is going to be 8 month and he can't even hold his head up for very...
Just the other day, a girlfriend of mine who had just gave birth to her second healthy child said, 'She's perfect!'...obviously it was not intended as a...
Hello I am 23 almost 24 years old and has NS if you want to talk I will talk I don't know a lot about it? my name is Ken what's your name and age if you ...
Hi Amanda, My name is Linda. I have a 6 year old son with noonans. Like you when he was born I wondered what did I do wrong? Then someone told me something...
Hey Amanda, Morgan is going to be 7 on the 25th of this month. She was a late blumer. She did not sit until she was 9 month, crawl at 12 months, and walked...
Does anyone with Noonans have very floppy and painfull joints?My son Connor has joints that can pop out and some times will be able to put them back in.We have...
Hi I'm 24 and my name is Christina I also want to find more about NS and I'm also here to talk too. It's nice to know that there is someone who know what its...
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