I would like to talk to anyone who has a child with Noonan Syndrome.My son Connor has NS, he is 11 years old and would love to know if anyone out there is...
my baby has noonans, so I cant be of help we just found out for sure last week.does your son have heart defects as well? Kirsten mom to alexandria 12, ethan 2...
I am someone with Noonans the younger years were the worse I still have some problems. which I don't care to talk about and even though I am an adult ...
how do you cope? I mean kids are mean..alot of adults too! I was made fun of and being someone who didnt have any visable problems that was tough. What did...
Hi I had a question for you. Your son is 11 yrs old. When did he get diagnosed with NS? How did he get there? I have an 11 yr old son who our doctors refuse to...
Hi, My son Ryan has NS, he is 6 years old. My son was dx as a baby by a genticist. He has Pulmonary Valve Stenosis, Woffle Parkinson White Syndrome, Hearing...
thats great advice! I was trying not to worry yet as Owen is 7 mos. but its good to know for the future. I have has several adults ask me whats wrong with...
I know your asking someone else but for us, Owen has heart defects, doesnt eat by mouth had lost weight AND he has facial characteristics of a child with...
Hi. My name is Ann and I live in Sweden. My daugther Frida has NS, she is now 2 years and 3 months old. When she was born and up to a year old they said they...
Thanks!!! Yes, she is very cute!!! *looking proud* And I think you're right, they do look the same in some ways! CFC is a syndrome very similar to Noonan, you...
Oh I see, I was also told that with Noonans, they sometimes get rashes easily. Im not a dr. lol but know what they told me lol. anyway Owen has curled up...
me again lol, it does seems similar to NS...I wonder if its "related"? ... From: Ann Gomér-Roslund To: noonan_support@yahoogroups.com Sent: Tuesday, December...
The genetics we went to says that in the future they will probably call CFC something like Noonan type 2 since they are so alike. They say that CFC is a more...
yes that is very interesting...I am very interested in learning more about NS. when we were at childrens hospital last week alot of the docs I talked to didnt...
Hi, My son's cardiologist has been watching Ryan since he was a few days old, and we found out he had heart difficulties, til recently we would have a check up...
Hi, So most people with NS has some heart defects I see. I have read that in the information I have. I see that here too. My son has one side of his heart...
Most people with ns has high blood presher I have high blood presher and has never taken meds for it. Havent had surgery yet eather on my heart I hope I never...
Hi, If you have concerns about your son's health, I would seek a second and even a third opinion. I have sought other opinions when I felt in my gut, that...
... Debra i have a son age 11yrs,he has been through a lot in the past years.Connor has a dent in his chest and is talking about surgery to make it better.He...
We would like to remind you of this upcoming event. connor dr stains Date: Wednesday, January 5, 2005 Time: 12:00AM GMT...
noonan_support@yahoog...
Jan 4, 2005 12:02 am
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We would like to remind you of this upcoming event. connor dr stains Date: Wednesday, January 5, 2005 Time: 12:00AM GMT...
noonan_support@yahoog...
Jan 4, 2005 11:02 pm
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We would like to remind you of this upcoming event. lee dr blair Date: Monday, January 10, 2005 Time: 9:00AM GMT...
noonan_support@yahoog...
Jan 9, 2005 9:02 am
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We would like to remind you of this upcoming event. lee dr blair Date: Monday, January 10, 2005 Time: 9:00AM GMT...
noonan_support@yahoog...
Jan 10, 2005 8:02 am
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Hi! I'm sorry but I have no idea what theese reminders are about...? If anyone knows, please fill me in! Ann (mother of Fanny -99 and Frida -02 with Noonan...
Can anyone help me? My son Connor is going to get his ears done, and i am trying to find out what is envolved.I would love to talk to anyone who is affected by...
Im sorry I cant help you my son is only 8 mos. 5 1/2 mos. adj. and we just recently found out for sure he has Noonans but I would love to chat tho! Kirsten mom...
kwild1@... wrote:Im sorry I cant help you my son is only 8 mos. 5 1/2 mos. adj. and we just recently found out for sure he has Noonans but I would love to...
Hi, I have a 3yr old boy with Noonan Syndrome. I would like to contact a parent from Australia with a child with Noonans. We live in Western Australia. Thanks,...
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