I will try...just e-mail me back if you need more info... SSI is supplement income for disability. It is quite a maze to navigate through, however, I...
Dear Family of Friends, I hope that this finds you all well. I know a few family members have been displaced by Katrina. I am praying for you. Praying also ...
thankyou it is a great help i can at least try to get the ball rolling.i feel so alone with all of this.my doctor and health visitor had never heard of it and...
My son was diagnosed with Noonan's yesterday. He is three months old (11 pounds, 22.5 inches, head circumerference of 39.3 cent) He passed hearing, eye, and...
Hello, sounds like your baby is at a healthy weight and length...that is great! If I could give any advice, I'd say not to worry about the current shape or...
Madeline: Thank you for the positive feedback, as it has been overwhelming, even though I knew my son might have a genetic syndrome prior to birth. He is my...
I have a son who was diagnosed with Noonans at the age of 2. He was also diagnosed with adhd this spring. He has a hard time learning at school, I would like...
Okay here's a new twist. My son who was becoming a very good eater has suddenly changed. I recently asked about it but now I noticed that there is a new...
Hi Maria, Zack (25 mos) really wants to be independent too but he also needs the purees and extra calories. One thing that we do with him is give him dipping...
How do you keep the dips from ending up everywhere? I was thinking a bowl with a suction cup bottom would be good (my 14 and 11 year old daughters had one) but...
Hi-the suction bowls are hard to get! You can get one at IKEA in the Uk so guess in USA too? They also have a massive red kids tray which has a non-slip rubber...
It does get quite messy with the dips but we do use the suction cup bowls. We got the bowls at babies r us. We also use a plastic mat under his chair also ...
Hello! My niece has Noonan syndrome, it is very mild. She is 10yrs old. She recently went for a check up and the Nurse Practioner noticed that she seemed to be...
Was your niece diagnosed based on a PTPN11 mutation, or was this a clinical diagnosis? If it was clinical, maybe it's actually not Noonan? In a message dated...
Well Logan is recovering from his cold and his appetite is BACK!!!! Yippeee! He's eating more 'grown-up' foods. He's also eating some of his purees (not as...
I have a 6 year old who has Noonan's. She was developmentally behind when she was 1 year old but now is she on track for her age. We are still not on track...
Haven't been on the net for a while,but here is an update on my son Connor who has noonans.He will be 12 in a couple of weeks and he has just started high...
Lynda here again,I have just gone through some of the worries that parents have with their little ones and it does remind me of my son Connor when he was a...
Hi, my name is Madeline and we are still waiting for the diagnosis...but word has it (as it seems to go for us, we never hear things directly...only from other...
Hi Maria, Sorry about the delay in replying. I've not long been back from holiday. My son is like yours and very independant. We have a bag full of all sorts...
Hi, Just a quickie. Bailey always manages to get the suction plates and bowls off his high chair try. He used to have some toys when he was 6 mths old that...
My name is Kerrie i live in Canberra and my 15 year old son Ryan has NS.I am new to the internet and can't believe how much there is to read on NS.I would love...
My name is Amanda. I just joined this group hoping to make friends and get support. My son was born with NS. He was born March 3rd 2005. I don't understand...
Hello Amanda, You are not alone. Just having people to talk to helps. My 6 year old daughter was diagnosed when she was 11 months. The internet is full of...
Hi Amanda welcome to the group my name is Ken and I am currently 23 will be 24 in two mouths and I have had NS since I was born I still have a lot of problems...
... will be ... lot of ... job down I ... If you not mind me asking, What kinds of problems or illness did you have to over come? Are you still over coming...
Yeah, Having someone to talk to helps. your right on that. Was it hard on you when you first found out? I found out that my son had it at birth. I was thinking...
Yes, it was hard at first. Because like you, my husband and I wanted to know where we went wrong. Before we heard NS, we were told that Morgan may have...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
