Hello, We have another GI related question. Our second, so far, GI doctor is once again pushing tube feedings to get Zachary to plot on a "normal" growth...
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mum
louloohall
Aug 13, 2005 7:27 am
Hi, Beth, I have all Tom's weights plotted if you get back to me later today will send them for you. His weight stuck for some time and we worried sick but he...
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cheekymobile
Aug 14, 2005 9:00 am
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
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cheekymobile
Aug 14, 2005 9:01 am
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
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spiritbear
kazzmann2002
Aug 14, 2005 9:09 am
kim was this ment to come to?? noonan_support@yahoogroups.com kazz cheekymobile <cheekymobile@...> wrote: hello tatman120@yahoo. My son has Noonans,...
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cheekymobile
Aug 14, 2005 9:25 am
Hi my name is Kim, I have a son called Bailey that is 2 and half years old diagnosed with NS. I was wondering if anyone lives in Melbourne or Australia that i...
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tatman
tatman120
Aug 15, 2005 11:40 pm
IT WAS PLASTIC SURGERY BEFORE AND AFTER CHANNEL 98 DISCOVERY HEALTH I THINK...
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cheekymobile
Aug 23, 2005 9:08 am
Hi My son has Noonans syndrome and has a few features but has been constantly sick since a few months old with tonsilitis conjunctivitis and lots of ear nose...
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kate S
kate_tn43
Aug 24, 2005 10:54 am
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
325
kate S
kate_tn43
Aug 27, 2005 2:34 pm
Note: forwarded message attached. ____________________________________________________ Start your day with Yahoo! - make it your home page ...
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kate S
kate_tn43
Aug 30, 2005 3:47 pm
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
327
lozzar8
Sep 7, 2005 4:16 pm
could somebody explain what SSI is please.Mson has noonans and has had surgery for his pulmonary stenosis.thanks...
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Madeline mckee
mckeefamily1
Sep 8, 2005 2:50 pm
I will try...just e-mail me back if you need more info... SSI is supplement income for disability. It is quite a maze to navigate through, however, I...
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maria
artononyx
Sep 8, 2005 7:05 pm
Dear Family of Friends, I hope that this finds you all well. I know a few family members have been displaced by Katrina. I am praying for you. Praying also ...
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lozzar8
Sep 9, 2005 7:53 am
thankyou it is a great help i can at least try to get the ball rolling.i feel so alone with all of this.my doctor and health visitor had never heard of it and...
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Madeline mckee
mckeefamily1
Sep 11, 2005 6:12 am
It's amazing, the learning curve with all of this is so big...even though we knew there would be health issues for our son when I was only 4 mo....
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jskione
Sep 13, 2005 5:16 pm
My son was diagnosed with Noonan's yesterday. He is three months old (11 pounds, 22.5 inches, head circumerference of 39.3 cent) He passed hearing, eye, and...
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Madeline mckee
mckeefamily1
Sep 14, 2005 2:27 am
Hello, sounds like your baby is at a healthy weight and length...that is great! If I could give any advice, I'd say not to worry about the current shape or...
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jskione
Sep 14, 2005 11:43 pm
Madeline: Thank you for the positive feedback, as it has been overwhelming, even though I knew my son might have a genetic syndrome prior to birth. He is my...
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heymickey11
Sep 20, 2005 1:35 am
I have a son who was diagnosed with Noonans at the age of 2. He was also diagnosed with adhd this spring. He has a hard time learning at school, I would like...
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maria
artononyx
Sep 28, 2005 1:37 am
Okay here's a new twist. My son who was becoming a very good eater has suddenly changed. I recently asked about it but now I noticed that there is a new...
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zack082503@...
ethansmom219
Sep 28, 2005 1:49 am
Hi Maria, Zack (25 mos) really wants to be independent too but he also needs the purees and extra calories. One thing that we do with him is give him dipping...
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maria
artononyx
Sep 28, 2005 5:22 pm
How do you keep the dips from ending up everywhere? I was thinking a bowl with a suction cup bottom would be good (my 14 and 11 year old daughters had one) but...
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mum
louloohall
Sep 29, 2005 6:52 am
Hi-the suction bowls are hard to get! You can get one at IKEA in the Uk so guess in USA too? They also have a massive red kids tray which has a non-slip rubber...
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zack082503@...
ethansmom219
Sep 30, 2005 1:18 am
It does get quite messy with the dips but we do use the suction cup bowls. We got the bowls at babies r us. We also use a plastic mat under his chair also ...
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quackers30
Oct 4, 2005 10:41 pm
Hello! My niece has Noonan syndrome, it is very mild. She is 10yrs old. She recently went for a check up and the Nurse Practioner noticed that she seemed to be...
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ML346@...
wl02144
Oct 4, 2005 11:18 pm
Was your niece diagnosed based on a PTPN11 mutation, or was this a clinical diagnosis? If it was clinical, maybe it's actually not Noonan? In a message dated...
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maria
artononyx
Oct 5, 2005 5:11 pm
Well Logan is recovering from his cold and his appetite is BACK!!!! Yippeee! He's eating more 'grown-up39; foods. He's also eating some of his purees (not as...
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Jim Moseley
morgidsmom
Oct 11, 2005 2:54 am
I have a 6 year old who has Noonan's. She was developmentally behind when she was 1 year old but now is she on track for her age. We are still not on track...
345
lynrob1011
Oct 12, 2005 12:20 pm
Haven't been on the net for a while,but here is an update on my son Connor who has noonans.He will be 12 in a couple of weeks and he has just started high...