Hello, We have another GI related question. Our second, so far, GI doctor is once again pushing tube feedings to get Zachary to plot on a "normal" growth...
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mum
louloohall
Aug 13, 2005 7:27 am
Hi, Beth, I have all Tom's weights plotted if you get back to me later today will send them for you. His weight stuck for some time and we worried sick but he...
318
cheekymobile
Aug 14, 2005 9:00 am
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
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cheekymobile
Aug 14, 2005 9:01 am
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
320
spiritbear
kazzmann2002
Aug 14, 2005 9:09 am
kim was this ment to come to?? noonan_support@yahoogroups.com kazz cheekymobile <cheekymobile@...> wrote: hello tatman120@yahoo. My son has Noonans,...
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cheekymobile
Aug 14, 2005 9:25 am
Hi my name is Kim, I have a son called Bailey that is 2 and half years old diagnosed with NS. I was wondering if anyone lives in Melbourne or Australia that i...
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tatman
tatman120
Aug 15, 2005 11:40 pm
IT WAS PLASTIC SURGERY BEFORE AND AFTER CHANNEL 98 DISCOVERY HEALTH I THINK...
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cheekymobile
Aug 23, 2005 9:08 am
Hi My son has Noonans syndrome and has a few features but has been constantly sick since a few months old with tonsilitis conjunctivitis and lots of ear nose...
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kate S
kate_tn43
Aug 24, 2005 10:54 am
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
325
kate S
kate_tn43
Aug 27, 2005 2:34 pm
Note: forwarded message attached. ____________________________________________________ Start your day with Yahoo! - make it your home page ...
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kate S
kate_tn43
Aug 30, 2005 3:47 pm
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
327
lozzar8
Sep 7, 2005 4:16 pm
could somebody explain what SSI is please.Mson has noonans and has had surgery for his pulmonary stenosis.thanks...
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Madeline mckee
mckeefamily1
Sep 8, 2005 2:50 pm
I will try...just e-mail me back if you need more info... SSI is supplement income for disability. It is quite a maze to navigate through, however, I...
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maria
artononyx
Sep 8, 2005 7:05 pm
Dear Family of Friends, I hope that this finds you all well. I know a few family members have been displaced by Katrina. I am praying for you. Praying also ...
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lozzar8
Sep 9, 2005 7:53 am
thankyou it is a great help i can at least try to get the ball rolling.i feel so alone with all of this.my doctor and health visitor had never heard of it and...
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Madeline mckee
mckeefamily1
Sep 11, 2005 6:12 am
It's amazing, the learning curve with all of this is so big...even though we knew there would be health issues for our son when I was only 4 mo....
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jskione
Sep 13, 2005 5:16 pm
My son was diagnosed with Noonan's yesterday. He is three months old (11 pounds, 22.5 inches, head circumerference of 39.3 cent) He passed hearing, eye, and...
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Madeline mckee
mckeefamily1
Sep 14, 2005 2:27 am
Hello, sounds like your baby is at a healthy weight and length...that is great! If I could give any advice, I'd say not to worry about the current shape or...
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jskione
Sep 14, 2005 11:43 pm
Madeline: Thank you for the positive feedback, as it has been overwhelming, even though I knew my son might have a genetic syndrome prior to birth. He is my...
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heymickey11
Sep 20, 2005 1:35 am
I have a son who was diagnosed with Noonans at the age of 2. He was also diagnosed with adhd this spring. He has a hard time learning at school, I would like...
336
maria
artononyx
Sep 28, 2005 1:37 am
Okay here's a new twist. My son who was becoming a very good eater has suddenly changed. I recently asked about it but now I noticed that there is a new...
337
zack082503@...
ethansmom219
Sep 28, 2005 1:49 am
Hi Maria, Zack (25 mos) really wants to be independent too but he also needs the purees and extra calories. One thing that we do with him is give him dipping...
338
maria
artononyx
Sep 28, 2005 5:22 pm
How do you keep the dips from ending up everywhere? I was thinking a bowl with a suction cup bottom would be good (my 14 and 11 year old daughters had one) but...
339
mum
louloohall
Sep 29, 2005 6:52 am
Hi-the suction bowls are hard to get! You can get one at IKEA in the Uk so guess in USA too? They also have a massive red kids tray which has a non-slip rubber...
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zack082503@...
ethansmom219
Sep 30, 2005 1:18 am
It does get quite messy with the dips but we do use the suction cup bowls. We got the bowls at babies r us. We also use a plastic mat under his chair also ...
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quackers30
Oct 4, 2005 10:41 pm
Hello! My niece has Noonan syndrome, it is very mild. She is 10yrs old. She recently went for a check up and the Nurse Practioner noticed that she seemed to be...
342
ML346@...
wl02144
Oct 4, 2005 11:18 pm
Was your niece diagnosed based on a PTPN11 mutation, or was this a clinical diagnosis? If it was clinical, maybe it's actually not Noonan? In a message dated...
343
maria
artononyx
Oct 5, 2005 5:11 pm
Well Logan is recovering from his cold and his appetite is BACK!!!! Yippeee! He's eating more 'grown-up' foods. He's also eating some of his purees (not as...
344
Jim Moseley
morgidsmom
Oct 11, 2005 2:54 am
I have a 6 year old who has Noonan's. She was developmentally behind when she was 1 year old but now is she on track for her age. We are still not on track...
345
lynrob1011
Oct 12, 2005 12:20 pm
Haven't been on the net for a while,but here is an update on my son Connor who has noonans.He will be 12 in a couple of weeks and he has just started high...
