Hi my name is Maria. My son is Logan. He was born on June 5, 2004 at 29 weeks. He is now 13 months old / 10 months adjusted. He was just diagnosed with...
Awww Maria, Firstly welcome to the group!! My son was diagnosed with NS at age almost 3years in April-he seems healthy most of the time-ear problems and slow...
-Thanks for the welcome. Logan is very healthy!! He has only had 2-3 VERY mild colds his short life. This even when DH and both DD had bronchitis and I had a...
Welcome Maria, I am the mother of Morgan who is 6 1/2 years old. She is small too. She weighs 40 lbs and 44 inches. At first both my husband and I were...
Hi, my name is Madeline. My son is Henry. He was born on September 3rd, 2004 at 37 weeks. Although he has received a 'negative' on his Noonan's test, I...
No my son doesn't have any type of feeding tube. He is gaining all on his own!! The ped is very happy with his growth so I really don't care what the...
First let me say that I am glad to have people to talk to about this. I belong to a few preemie groups. I had one person berate me cause I don't want to go to...
Hi I am an adult female in my 40's with possible Noonans. I had surgery for pulmonary stenosis when I was 18. My mom tells me that I didnt gain weight either...
Hi Maria, I feel the same way you do. I want to let Zack grow at his own pace. Zack will be 2 years old on 8/25, he is 14 lbs, 5 ozs and is 27 1/4 inches in...
Hi Maria, I feel the same way you do. I want to let Zack grow at his own pace. Zack will be 2 years old on 8/25, he is 14 lbs, 5 ozs and is 27 1/4 inches in...
im a 30 year old male ive always wonderd about my wide neck and weird hair line as a kid i was teased and called names "cobra" "no neck" i suffer from panic...
Hey there, first off, everyone is going to have their own opinions...especially when it comes to difficult issues regarding our baby's health. I think others...
Hello, I'm sorry it has taken me this long to get the parent's information online. Things have been crazy (which I will email about soon) and it wasn't as...
I am not sure if I had a weight problem. I am just like you Shirley I could eat and eat and never gain a pound but I have to eat or I will get very sick to...
My son currently gets SSI due to the pulmonary stenosis. He hadn't been DX'd with Noonan's when he qualified. Does Noonan's qualify as a disibility? Maria...
I know NS is a disability but I am not sure if one could get SSI. My daughter has pulmonic stenosis. She had surgery when she was 18 months old. How did you...
Actually, when he was in the NICU I was told to apply. But the paperwork they gave me said he needed to be under a certain weight; which he wasn't. After he...
Childrend with Noonans can very well get SSI becouse my daughter gets it . I was told to apply when she was born but i waited until she was a year old and...
our son also receives SSI...but I think it is because of his heart issues and/or failure to thrive. I don't know about the Noonan's diagnosis qualifications....
Hi My grandaughter with noonans had struggled with weight gain. They did a sleep study and found that she was having so many apnea (not breathing) spells that...
My son came home from the hospital with an apnea monitor. After 2 months they determined he wasn't having apnea. I think it is a combination of his stenosis...
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate "Love is just like life, it's...
Hello, We have another GI related question. Our second, so far, GI doctor is once again pushing tube feedings to get Zachary to plot on a "normal" growth...
Hi, Beth, I have all Tom's weights plotted if you get back to me later today will send them for you. His weight stuck for some time and we worried sick but he...
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
hello tatman120@yahoo. My son has Noonans, there is a lot about the condition on the net, if you just type in Noonans. There is a blood test now you can...
kim was this ment to come to?? noonan_support@yahoogroups.com kazz cheekymobile <cheekymobile@...> wrote: hello tatman120@yahoo. My son has Noonans,...
Hi my name is Kim, I have a son called Bailey that is 2 and half years old diagnosed with NS. I was wondering if anyone lives in Melbourne or Australia that i...
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