Hi my name is Connie. I am the mom of 9 children! 2 birth that are in their 20's and married and 6 adopted and 1 foster baby. Our 3yo whom we got at birth is...
Hello i just read your letter and i comend you for doing so much good for other childrend . I know it might be a little overwelming to know a child has ...
We went in for our baby's 9-month check up today...and it seems like his weight has almost plateaued. He is 12lbs. 10oz. and measures 26inches. He has a...
I know this topic has probably been covered but I am relitively new to this as Tom is recently diagnosed..so apologies!! Tom is getting ear infections...
Sorry about the tough day! Boy i can relate. My little guy is 3yo now. He was born with a Cleft Palate besides being a orrible eater and slow gainer. The...
My 6 year old have tons of ear infections and we were concerned about hearing loss but as they as.. they will grow out of them. She as not had an ear...
I know how you feel.. Morgan had reflux so bad as an infant. I nursed her and it seemed whenever she ate it all came back up. She never had to have the...
Hi, Well, we saw a new GI doctor. He is much better than the last one we were seeing. At least this one ordered a "Milk Scan", increased his Zantac for the...
Hi my name is Maria. My son is Logan. He was born on June 5, 2004 at 29 weeks. He is now 13 months old / 10 months adjusted. He was just diagnosed with...
Awww Maria, Firstly welcome to the group!! My son was diagnosed with NS at age almost 3years in April-he seems healthy most of the time-ear problems and slow...
-Thanks for the welcome. Logan is very healthy!! He has only had 2-3 VERY mild colds his short life. This even when DH and both DD had bronchitis and I had a...
Welcome Maria, I am the mother of Morgan who is 6 1/2 years old. She is small too. She weighs 40 lbs and 44 inches. At first both my husband and I were...
Hi, my name is Madeline. My son is Henry. He was born on September 3rd, 2004 at 37 weeks. Although he has received a 'negative' on his Noonan's test, I...
No my son doesn't have any type of feeding tube. He is gaining all on his own!! The ped is very happy with his growth so I really don't care what the...
First let me say that I am glad to have people to talk to about this. I belong to a few preemie groups. I had one person berate me cause I don't want to go to...
Hi I am an adult female in my 40's with possible Noonans. I had surgery for pulmonary stenosis when I was 18. My mom tells me that I didnt gain weight either...
Hi Maria, I feel the same way you do. I want to let Zack grow at his own pace. Zack will be 2 years old on 8/25, he is 14 lbs, 5 ozs and is 27 1/4 inches in...
Hi Maria, I feel the same way you do. I want to let Zack grow at his own pace. Zack will be 2 years old on 8/25, he is 14 lbs, 5 ozs and is 27 1/4 inches in...
im a 30 year old male ive always wonderd about my wide neck and weird hair line as a kid i was teased and called names "cobra" "no neck" i suffer from panic...
Hey there, first off, everyone is going to have their own opinions...especially when it comes to difficult issues regarding our baby's health. I think others...
Hello, I'm sorry it has taken me this long to get the parent's information online. Things have been crazy (which I will email about soon) and it wasn't as...
I am not sure if I had a weight problem. I am just like you Shirley I could eat and eat and never gain a pound but I have to eat or I will get very sick to...
My son currently gets SSI due to the pulmonary stenosis. He hadn't been DX'd with Noonan's when he qualified. Does Noonan's qualify as a disibility? Maria...
I know NS is a disability but I am not sure if one could get SSI. My daughter has pulmonic stenosis. She had surgery when she was 18 months old. How did you...
Actually, when he was in the NICU I was told to apply. But the paperwork they gave me said he needed to be under a certain weight; which he wasn't. After he...
Childrend with Noonans can very well get SSI becouse my daughter gets it . I was told to apply when she was born but i waited until she was a year old and...
our son also receives SSI...but I think it is because of his heart issues and/or failure to thrive. I don't know about the Noonan's diagnosis qualifications....
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