yeah you can have my email its claire_braniff@... do you have yahoo messgner or msn I have both. Where are you from and whats your name sorry its taken...
Welcome Jenny that's great that you are graduating from college I never went to college cause I never did real well in school. They think its from N/S and...
No not at the moment I don't I can only use my parents PC and So I don't get on very often eather it seems like that's all I get is stuff from the noonas, and...
Hi, I cant help with that but from what I have read it says some may have learning disabilities but generally NS kids are above average intelligence. How is...
Have they mentioned anything about the Mastoid Bone? My nephew doesnt have NS, but lots of allergies ear infections last year the bone was taken out and he...
Hi welcome! My youngest son has NS, heart defects, feeding issues etc. He is not growing well he has been at around 26 inches long for several months now no...
We are seeing our new ped this week so Im hoping they go ahead and schedule us to see the surgeon Im not happy about another surgery but I guess its neccessary...
Hi My grandaughter is 9 months old. The genetic doctor says that NS respond really well to growth hormone and can help they reach a normal short adult height....
Oh ok thanks! We havent even talked about growth hormones yet I think maybe Owen has more going on than what we know yet. How is your granddaughter doing? ......
Hi Jenn, How did the doctors decide you have NS? Are you sure you have Noonan's? Soundslike you might have Turner's. VERY similar but Turner's has the ...
HI, I was tested when I was a baby. I was diagonsed with Noonans before I was a year.I velive there were things they did. I was a very sick baby I had tons of...
Right now she seems to be right on track with the other children in her class. The only things I am noticing is that she is hyper to no end and never stops...
can u explain what you mean by your ears have the flap thing Jacqui Jenn Lynn <gwen_vere@...> wrote: HI, I was tested when I was a baby. I was diagonsed...
lol maybe she has alot to say? sorry jk but I have a three yr old that talks so much he even talks in his sleep lol.your other kids dont have NS? Mine dont...
Zack has been 26 3/4 inches for several months now too. His doctors say it's ok because of the NS. He has been to an endocrinologist who is against growth...
I am right there with you...I am not looking forward to Zack having surgery. This is the first one for him...he has been sedated for tests but never under...
NS and TS are almost exactly the same. The MAJOR difference is in TS, girls do not develope secondary sex organs...as in your case. The difference with proof...
I have a six year old little girl with NS but we are not at that stage in life yet. Wendy Scott n' Ashli <scottpetitt@...> wrote: NS and TS are almost...
Are you and your family considering growth hormones for your grandaughter? I have a six year old who has NS but I am not sure about the hormones. We see our...
Low-set ears with thickened helices that's what I have. I had a blood test to find out that I did have noonans as a baby. I was in the reference range for...
that was well I almost said hardest lol but with OWen being in the NICU that was the hardest. I was so scared and Im hoping the "procedure" for bringing t hat...
Oh ok thanks, Im not sure if thats going to be the answer for us or not and no one has mentioned it anyway its interesting to see what other people have done...
Im confused. I have ovaries, and a uterus. The only thing I don't have is a working pituitary gland due to the misalingment in my brain. Jim Moseley...
You know, until you said about Owen being in the NICU, I had completely forgot about that feeling. Zack was in the NICU for a few weeks and I was so scared...
I have some of the same problems you do my worst vision is in my right eye do the only thing different is that I don't have any hearing problems. but ...
We are going to wait an see what her growth does. ... __________________________________ Do you Yahoo!? Yahoo! Small Business - Try our new resources site! ...
when my son was 1 yr old, he weighed barely 15#.He didnt grow on height either. It still amazes me that after 11 yrs, they still dont have a clue as to whats...
Hi It is a day to day thing with her. She is getting a stomach button this month, because she keeps pulling out her ng tube. She has a trach, which has...
I think using growth hormone at this age for your son would be a great idea. I have found that the only way to get anything done for your child is to really...
Owen had his NG tube from August he came home finally in July but from August to November he had the NG tube he cant swallow and lost wt. so they finally...
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