Oh wow, Im sorry I hope he is ok....I see I thought that it was actual
surgery we havent done that no one has said anything about it. the
Geneticist said they would input all the info they gathered in the computer
and see what if anything new they come up with not sure how long that will
take but Im guessing it will be a few weeks at least.
----- Original Message -----
From: "Beth" <zack082503@...>
To: <noonan_support@yahoogroups.com>
Sent: Friday, April 01, 2005 3:59 PM
Subject: [noonan_support] Re: Bifid rib


>
>
> Hello,
> JMML is a rare childhood leukemia-Juvenile Myelomonocytic Leukemia.
> So far it seems to be a transient version, he has never had any
> treatments for it. The skeletal survey is only x-rays, not
> surgery. Zack is 19 months old. Zack is not fond of being touched
> either and I agree that it probably has something to do with the
> nicu and all the doc appointments. He had his physical therapy
> yesterday and cried the majority of the time since she kept touching
> him and making him move. What did the geneticist say?
>
> --- In noonan_support@yahoogroups.com, <kwild1@c...> wrote:
>> HI, what is JMML? Owen hasnt had any skeletal surgeries no one has
> mentioned
>> anything at this time so with fingers crossed I hope he doesnt
> have to but
>> while at the geneticist yesterday they really noticed his bones
> sticking out
>> its alot more prominent while he is laying down. How old is Zack?
> Owen
>> doesnt get upset either...well he doesnt like being messed with
> really guess
>> its all the time in the nicu and all the dr. visits lol.
>> ----- Original Message -----
>> From: "Beth" <zack082503@t...>
>> To: <noonan_support@yahoogroups.com>
>> Sent: Wednesday, March 30, 2005 10:29 PM
>> Subject: [noonan_support] Re: Bifid rib
>>
>>
>> >
>> >
>> > That is exactly what I thought about Zack's rib cage...it just
>> > didn't look normal. With his JMML diagnosis I have been thanking
>> > God that this was not a tumor. The docs have been feeling it
> and he
>> > doesn't get upset when I pick him up or dress him so I assume
> that
>> > it doesn't hurt him. Please don't be sorry for all the
>> > questions...I feel that knowing about others experiences is how
> we
>> > can learn about our wonderful kids and how we can help them and
> it
>> > gives us parents a little peace of mind knowing that we are not
>> > alone. Has Owen had a skeletal survey? Zack had one when he
> was 4?
>> > months old and at that point there were no problems...no one said
>> > anything about this bifid rib but I am going to ask the
> geneticist
>> > if maybe the report said it and they felt it was normal enough
> so no
>> > one felt it necessary to tell me.
>> >
>> > Beth
>> >
>> >
>> > --- In noonan_support@yahoogroups.com, <kwild1@c...> wrote:
>> >> oh wow! I was just curious because Owen's rib cage is kinda
> funky
>> > dont know
>> >> how to explain it good but it doesnt look normal I guess. Thank
>> > God it wasnt
>> >> a tumor...does it hurt him? Sorry for all the ?'s
>> >> ----- Original Message -----
>> >> From: "Beth" <zack082503@t...>
>> >> To: <noonan_support@yahoogroups.com>
>> >> Sent: Tuesday, March 29, 2005 9:03 PM
>> >> Subject: [noonan_support] Re: Bifid rib
>> >>
>> >>
>> >> >
>> >> >
>> >> > You can only see it when he has his shirt off...it looks like
> a
>> > lump
>> >> > about the size of a quarter just above his left nipple. At
>> > first I
>> >> > thought it might be muscle (or god forbid a tumor) so I asked
> his
>> >> > p.t. and she said that it was definately bone so we called for
>> > an x-
>> >> > ray.
>> >> >
>> >> > --- In noonan_support@yahoogroups.com, <kwild1@c...> wrote:
>> >> >> I have never heard of that is it something that you can see
> when
>> >> > looking at
>> >> >> him?
>> >> >> ----- Original Message -----
>> >> >> From: "Beth" <zack082503@t...>
>> >> >> To: <noonan_support@yahoogroups.com>
>> >> >> Sent: Tuesday, March 29, 2005 5:38 PM
>> >> >> Subject: [noonan_support] Bifid rib
>> >> >>
>> >> >>
>> >> >> >
>> >> >> >
>> >> >> > Hi everyone,
>> >> >> >
>> >> >> > Zack just had a chest x-ray and they said that he has a
> Bifid
>> >> > left
>> >> >> > anterior 5th rib. The doc said that it is normal and he
>> > should
>> >> > not
>> >> >> > have any problems with it but that is all he said.
>> >> >> >
>> >> >> > Anyone else heard of this? Is it a NS anomalie?
>> >> >> >
>> >> >> > Any info would be appreciated.
>> >> >> >
>> >> >> > Thanks,
>> >> >> > Beth
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> > Yahoo! Groups Links
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> > Yahoo! Groups Links
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >> >
>> >
>> >
>> >
>> >
>> >
>> >
>> >
>> > Yahoo! Groups Links
>> >
>> >
>> >
>> >
>> >
>> >
>> >
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> Yahoo! Groups Links
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