From: Stephanie <chefsteph82@...>
Subject: [noonan_support] 1 year old with ns
To: noonan_support@yahoogroups.com
Received: Friday, March 20, 2009, 3:44 PM

hello everyone! my son turned 1 on March 6, 2009.  On March 3rd we were told
that he has Noonans Syndrom, specificly RAF1.  I was wondering if there is
anyone else out there with the same thing that would tell me what to expect. 
Anyone know of any good websites to do research on?  It is very
 frustrating to
do a search and not find anything!!  Thanks!



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