My name is Mimi and I have noonan's. I was also born with VSD - which closed on
its own and pulmonary stenosis. I had a very successful valveplasty when I was 8
and am 28 years old.
The operation was really nothing to worry about and now I think that its even
easier. Before the operation I hardly had a heart beat - just swooshy sounds on
the eco - there was an improvement straight after the op and then it just got
better and better till I had a normal heart beat. - which was very exciting for
an eight year old.
I have led a very normal life since then - I have gone trekking in Thailand,
traveled through Asia and UK. I also lived and worked in Thailand doing tsunami
relief.
I live in Sydney at the moment but studying public health at monash - I would be
more than happy to chat to you about my health experiences with Noonan's and
heart problems.
Hi there everyone. My name is Kim and i live in Melbourne Australia, my son bailey was born with Noonans syndrome and has all the characteristics of Noonans ...
Hi Kim, My son Jack (17 months) also has a heart murmur. His is very minor and does not require surgery. In fact, many people have heart murmurs that do not...
Hi Stacey, Your email was beautiful, it has given me positive hope. thankyou, i will continue waiting and think of the positives that you have given me. ...
Hi Kim, My daughter, Kylie, has pulmonary valve stenosis and atrial septal defect. For her PS it was not mild it was severe(she had 75% blockage) and she had...
Hi there, thankyou for your very quick reply, as i have stated, i live in Melbourne Australia and althought the geneticists here are extremely helpful i...
Hi Kim, Yeah, unfortunately Kylie does seem to get sick alot. They say it is because of her having a weak immune system. I will let you know how everything...
Hi there, thankyou for your very quick reply, as i have stated, i live in Melbourne Australia and althought the geneticists here are extremely helpful i...
Hi Kim My name is Bob and I am up on the sunshine coast Queensland. My Daughter Leonie is 13 and was diagnosed with Noonons at birth; she had a suspected heart...
Hi Bob, wow thats great that someone has replied from Aust! Please tell me all about your daughter, as i still have days of denial and worry and i am very...
Hi Kim Glad I got through, message was returned. My email is daddi@... Leonie is 13 and although delayed has spent her time at main stream school with...
Hi Kim, My son Connor who is now 14yrs old has pulmonary stenosis and at birth he had an ASD and a VSD but they closed on their own. He had a catherterisation...
Hi Kim, My name is Mimi and I have noonan's. I was also born with VSD - which closed on its own and pulmonary stenosis. I had a very successful valveplasty...
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