I completely agree with Lynda - that our children are given to us
exactly as they are for a reason. As much as I wish Lauren did not
have NS because of the trials and difficulties ahead of her (cause
let's face it, kids have enough challenges without the additions from
NS...) I also know, without at doubt, that she wouldn't be who she is
if she didn't have it.

I love who she is.


--- In noonan_support@yahoogroups.com, "lee770894" <l.robinson660@...>
wrote:
>
>
>
>
>
> My son Connor was diagnosed at 17 months with NS and it has been a
> sparodic mutation (no one in either families have it, it just
> happened out of the blue.) I think just as well I didn't know what
> was in front of me but deep in my heart I know that god gave me
> Connor and Lee for a reason.
>
> Lynda mum to Lee hypothyroidism, episodic ataxia type 2, and
> schizoaffective disorder. Connor NS,PVS,Asthma, large liver
> spleen,hyperexstensive joints and much more.
>
>
>
> --- In noonan_support@yahoogroups.com, "Robyn" <dictatorqueen@>
> wrote:
> >
> > We're still waiting to find out if we (the parents) have NS or not.
> > Our first boy (2.5 years) is fine, our infant (5 mo) was diagnosed
> at
> > birth.
> >
> > We're waiting for DNA confirmation as to whether hubby or I have
> > passed it on.
> >
> > Would we have had kids had we known? I'm not sure. Possibly not. It
> > definitely would've changed our outlook.
> >
> >
> >
> > --- In noonan_support@yahoogroups.com, "heather51308"
> > <jamieandheatherscruggs@> wrote:
> > >
> > > Did anyone here know they had Noonan Syndrom before having
> children??
> > >
> >
>